Have a strange feeling in the ball of my foot. Li... - LUPUS UK

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Have a strange feeling in the ball of my foot. Like I have something in my shoe but I don't. Could it be Neuroma???

Wendy39 profile image
Wendy39
β€’21 Replies

Yesterday I noticed that I have a feeling that I have something in my shoe, but when I took it off, there was nothing there. This sensation bugged me for the rest of the day. I ended up feeling my foot and found what I think is a small lump on the ball of my foot, near my biggest toes. However, with all the bones in your feet it's hard for me to be 100% sure. It is worse today. I wouldn't say it's painful. It's more irritating than anything. Sometimes a bit tingly. I've googled and come up with "neuroma". Like a swollen, inflamed nerve in the foot. Anyone else experienced this? Thinking I need to see doctor about it. But do you ever feel loathed to contact them, as I seem to be there one way or any other - prescriptions bloods etc - every week. 😬😫😩 I have been wearing, flat, sensible shoes for a while now, what with OA in hips and knees and a bad back etc. I wear FitFlops which are podiatry approved, most days. Be interesting to hear from anyone else with this. Thank you

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Wendy39 profile image
Wendy39
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21 Replies
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Barnclown profile image
Barnclown

Oh no: sorry you've got this on top of everything else 😧

Yes i have morton's neuromas in both my forefeet...have been managing these for many years. mine are between the 3rd & 4th metatarsal, which is the more common position for MNs.

My combo of Ehlers Danlos hypermobility + SLE tendon tightening + osteoporosis brought on the collapse of my forefeet (not my ultra high arch), causing equines contracture (a type of club foot involving claw toes) to develop. This all made the MNs grow despite a lifetime of bespoke insole orthotics in sensible footwear. Basically, all this was so painful & debilitating that I couldn't stand or walk for longer than 5 minutes for many years

my case is extra miserable because my MNs are associated with synovitis & bursitis in the closest metatarsal joints which means shooting electric shock-like jolts from the MNs + aching burning pain from the joint inflammation, + my simultaneous raynauds & erythromelalgia freezing + burning + numbness + dysautonomia crazy colours 24/7....which means my forefeet signs & symptoms are more complex than if the MNs were the only issue. In my right forefoot, the complex of issues is so severe that it is diagnosed as having Complex Regional Pain Syndrome (CRPS).

So, I think you're right: see your GP + a good podiatrist or chiropodist for examination & diagnosis. The position of your lump may mean it's something other than a MN.

Please let us know how you get on

πŸ€πŸ˜˜πŸ€πŸ˜˜πŸ€πŸ˜˜ coco

in reply to Barnclown

I'm same as Coco - MNs in both feet - hence my HU name as they used to twitch and tingle madly for a year or so! I find that I can't wear any other shoes than Hotters, Ecco, Fly or Fitflop nowadays and also need inserts. However the RA swelling has all gone from my metatarsals these days and they don't twitch or swell and only hurt if I've walked a long way - otherwise they just freeze or burn and I have loss of sensation from Raynauds and SFN.

As Coco says the location of yours might mean it's something other than Mortons Neuromas though. You could ask a podiatrist as MNs are very common and they would know straight away. Tx

Wendy39 profile image
Wendy39 in reply to

Thank you so much for getting back to me so quickly. I will try to get a GP appointment sometime this week. I love my FitFlops and have a few pairs now. The ones I wear day to day, are more like a trainer, high tops and are laced up. So comfy. They might be expensive but they do last. I'll let you know what the GP says. Wendy xx

Wendy39 profile image
Wendy39 in reply to Barnclown

Thank you BC for your reply. I do have a habit of linking everything to my lupus and my husband does say sometimes, it might just be one of those things, not everything is linked to your lupus. So I wanted to run it past you experts first. Every time i read one of your replies, I am always amazed at what you have had to face in your life time. You really are an amazing lady! Big hug from me. And not only that, you are here sharing your knowledge to help others. I am grateful. I also worry that I might turn into a hypochondriac and the GP's are hiding from me everytime I show my face. But you are right, I need to see someone and find out exactly what I am dealing with. The battle for an appointment will commence tomorrow. Thank you. Wendy xx

Barnclown profile image
Barnclown in reply to Wendy39

😍 GO GIRL GO πŸ‘πŸ‘πŸ‘πŸ‘

This worry re GPs having had enough of us....πŸ˜”.....seems kind of inevitable....am seeing my gp yet again on Thursday...am worrying already πŸ€·β€β™€οΈ....some of us here have GPs who are welcoming & understanding & actually discuss stuff....I keep wishing mine didn't act more like a vending machine πŸ€–....

You're totally welcome....if sharing my stuff helps you or anyone here, this helps me feel better about having to live through it all β€οΈπŸ’

ukgospeldiva profile image
ukgospeldiva in reply to Barnclown

Who could deny you BC anything lady? I know​ there is a difference in GP approaches but on the whole most seem not to mind seeing folk with conditions causing them issues- some of you seem to think or are made to feel that your myriad of fluctuations in health equates to being malingerers - which your most definitely are NOT!

If you good folks feel uncomfortable prehaps try to see another GP in the practice for a change of eyes/ears or the Nurse/practionner depending upon the severity of your symptoms?

The trouble with Lupus is that it has no limits to the trouble it can cause.

Personally, I see it as my duty to 're-educate'' my GP every time something goes haywire for the sake of all future Lupus SLE patients LOL

Barnclown profile image
Barnclown in reply to ukgospeldiva

😍 Hear Hear πŸ‘πŸ‘πŸ‘

πŸ’πŸ’πŸ’πŸ’πŸ’πŸ’πŸ’πŸ’

ukgospeldiva profile image
ukgospeldiva in reply to Barnclown

And a sence of humour is a given lol

Wendy39 profile image
Wendy39 in reply to Barnclown

Just to let you know BC that I did mention this foot issue to my GP last week. She said if it has gone then it couldn't be Morton's Neuroma. She said they don't go away on their own. She said that it was possibly a ganglion that had now burst? But as it was gone, then don't worry. I hope she's right. x

Barnclown profile image
Barnclown in reply to Wendy39

Thanks for remembering! I do agree with her: if it's gone then it can't be a MN! πŸ€” Oddly enough i had a ganglion in there once that burst & hasn't troubled me again: i'd forgotten all about it πŸ˜†! πŸ€πŸ˜˜

Wendy39 profile image
Wendy39 in reply to Barnclown

πŸ˜‚πŸ˜‚ We have so much to remember and we have memory problems! The irony. πŸ€” xx

Barnclown profile image
Barnclown in reply to Wendy39

πŸ₯‚πŸ‘πŸ˜

ukgospeldiva profile image
ukgospeldiva in reply to Wendy39

Yep, she's pretty cool girly, her photo as she says 'of 'the girl I used to be' belies the woman of forbearance and intuition now.

ac489 profile image
ac489 in reply to Barnclown

I have the same as coco but mostly on left foot. Hurts terrible some days and very hard to stand or walk

Barnclown profile image
Barnclown in reply to ac489

Am so sorry ac....this is miserable....do you find your lupus meds help with this? I wish I could stay on 10-6mg daily pred instead of down @ 5mg cause a higher dose loosens the soft tissues in my legs/feet and damps down the simultaeous RP&EM just enough to mean I can skip a day or 2 of arduous legs/feet rehab. Am going to discuss this at my next rheumatology appt....after all, daily 7.5mg pred & lower is generally considered "ok"...,

Fennella02 profile image
Fennella02

I think I have the same thing - and so does my mother. I had assumed that it was an inherited structural abnormality which I manage by only ever wearing decent quality, generously padded shoes. Crocs & FitFlops in the summer, Clarks & Hotter at other times. Wellies, which I wear a lot, have to be the expensive ones too πŸ‘’πŸ‘žπŸ‘ŸπŸ‘’πŸ‘žπŸ‘Ÿ

misty14 profile image
misty14

Hi Wendy

Just want to wish you luck for your GP appt this week. Sorry you are now coping with this extra problem with your foot, never ending isn't it?. Nerve problems can give all kinds of weird and painful feelings in feet as I can attest to like the others. Would you be able to have a steroid taper to help?. Intetesting what your GP says about what it could be!. Hope the mepacrine is helping and your not turning yellow!. Fingers tightly crossed for you. X

Wendy39 profile image
Wendy39 in reply to misty14

Hello. Thank you for your message. I don't seem to have been able to catch up on here much recently. Busy time of the year with children, swimming galas and special assemblies etc. Anyway, I haven't made an appointment yet but this morning a letter came in response to mine re implementing my new treatment plan from Dr Kaul in London. GP has asked me to come in on 6th July to discuss it. The foot pain has gone down slightly. But have got tingling sensation and some toe pain. But it isn't severe. Might keep an eye on it and mention it on the 6th, unless it gets worse in the meantime. I really hope my GP will implement it, without a battle, I am tired of all of this now. And no real help from MP or AM as they feel they can do no more. So we'll see. Thanks again. Wendy x

misty14 profile image
misty14 in reply to Wendy39

Hi Wendy

You've got a good plan there for your foot pain. Glad it's eased!. Good you had a response from your GP but pity it's still quite a wait to see her!. You must be tired of it all, constant battling!. Fingers crossed for the 6 th and she's willing to implement Dr Kaul's plan. Will look forward to your update. Take care. X

Wendy39 profile image
Wendy39

Very strangely this lump disappeared form my foot after about 8/9 days. So now really unsure what caused it. It was so bad for those days. I will still mention to my GP at the next appt. Thank you all.

Wendy39 profile image
Wendy39

Just to let you know that I did mention this foot issue to my GP last week. She said if it has gone then it couldn't be Morton's Neuroma. She said they don't go away on their own. She said that it was possibly a ganglion that had now burst? But as it was gone, then don't worry. I hope she's right. x

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