Apologies to everyone for not having been here much recently to support others - as I mentioned in another post my fiancé was diagnosed with a bladder tumour which was removed this week. They have given him a chemotherapy treatment to ensure they killed everything and were very happy that they removed it all in one hit. We have to wait 3 weeks to find out whether it was malignant (they seem pretty certain it is so expecting it to be) and what stage it is graded at. If it's the lowest level as we suspect then he's all done other than careful monitoring for the next 5 years and zapping it when it grows back. Anyway - all been incredibly stressful and exhausting and dealing with that, the flares it leads to due to me having to do more than i can really manage at the moment, and going through the whole PIP process at the same time has left me without the energy to be able to be much help to anyone else but once I catch up on my rest etc I'll be back reviewing the site again.
Anyway, just before all that happened I had seen my gp to start talking about my hip bursitis (as the rheumy thought it was) as I'd lost over 2 stone and it wasn't improving. She sent me for x rays over a month ago and I just got the results today ..
"The hip and sacroiliac joint spaces appear well preserved. There is a bilateral bony prominence at the femoral head/neck interface which may suggest femoro-acetabular impingement.
There is scoliosis in the lower lumber region"
I love how scoliosis is just mentioned as an aside! Not had that show up before though so slightly concerned by it.
Based on doctor google it seems bone spurs have formed on my hips which are damaging the joint and cutting the cartlidge and nerve fibres hence the really sharp pain when I'm walking, or standing, or sleeping ... or doing anything really. The gp told me it's very painful ... ummm yeah I know lolololololol she is referring me to the local arthritis specialist hospital for physio. I can't see it helping as it's where I went privately but at the same time they were treating me for bursitis then and I guess the treatment might differ now they know what it is. I strongly suspect that this may end up with me either accepting the severely limited movement I already have or letting them operate to stop further damage - the info online doesn't say anything about whether this would help me get back to walking normally though.
Anyway is this something that anyone else has any experience of and any tips on what helps, what doesn't help, what makes it worse etc etc.? I don't even k ow what to make of the scoliosis bit either.
Funnily enough I had a call from the garage regarding my car today - it's on a 3 year pcp plan and I'm 2 years in so they are offering me an early upgrade. I have been thinking for a while that I am struggling with a manual car and really should consider switching to an automatic and this pretty much decides it. All good news for the PIP appeal I guess 🙈