This week was first week back after the week off for half term. I haven't taken my hydroxy once this week . I just keep forgetting . Today I am so tired my legs and feet are killing . I'm not sure if it's because I haven't taken the tablet or because it's first week back .
Today I have taken the tablet and am going to try and remember to take it everyday this week coming and see if by this time next week I am tried or not .
Written by
LouLamb
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When I was suppose to reduce my hydroxy (due to winter months) I didn't realise at first that I was getting achy legs and flu like symptoms and was told by doc to increased it again after realising it after few weeks it was the decrease of meds making me unwell. Good to be observant and see if you are having a reaction to not having your hydroxy .... Did motivate me to remember to take my meds. Feel better soon. ML
I did come off it for a month or so- (i had come off steroids for a few months too) then all symptoms returned, sore joints etc being really fatigued, scabs in hair .. and it was fairly nasty. So I went back on hydroxy and it took weeks to get back to being anywhere near better. I stayed off steroids thwn for 2 years but then had to go back on these with a partially collapsed lung.
Probably best to try and keep on hydroxy or talk it through with gp
Hi Loulamb. When I first started on my lupus meds I kept forgetting my meds as well, or I would take them then later I could t remember if I took them! I now use a pill box which I refill with weekly my meds and vitimins and I use an app on my phone to keep track of the meds, dosage, appointments, refills, and other information and it reminds me when to take them. It's one of the apps that someone m entioned on this forum called Med Helper.
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