How does this work? Aren't the meds meant to stop this?
I'm on 10mg pred coming down from 40 and on 20mg mtx as well as hydroxy so quite an aggressive treatment. For some reason the steroids didn't kick in as quick with the stomach and breathing problems as I thought they would and the mtx hasn't made much difference either. In fact it possibly got worse after starting the mtx or maybe coincidence.
Rheumy suggested dropping down mtx dosage, not stopping, but neuro wants me to increase as he suspects scleroderma which my rheumy ruled out. My eye doctor said there is evidence of vaso vagal spasms and blood flow issues which would explain a lot of my symptoms and told me to ask my GP for a referral to a specialist. Who? I already see far too many specialists who all give me differing diagnosis What treatment would I take for poor blood flow? Why don't these doctors refer you themselves instead of passing you back through the system? Meanwhile, despite palpitations, my heart seems to be ok and the cardiologist said unless I was blue then I can assume that blood and oxygen are flowing ok.
As well as being cramped up in abdominal pain, I have headaches and eye pain from hell, am dizzy and disorientated, legs are wobbly and twitchy and I feel totally wiped out. I'm twitching and tingling like all my nerves are hyper reacting to something.
Further more, inflammation doesn't usually show in my blood but has just increased while on meds. Only by 10 but for me that's a lot.
Any help or suggestions from anyone would be really appreciated.
Thank you X