I took the plunge and ordered some after hearing about it here. Had to stop after a couple of sachets because I went through a phase of food and meds refusing to go down, and the stuff is too expensive to waste.
I haven't counted how many days I've been back on it, and it may be coincidence, but my innards are very settled, feeling good, and I can eat more than in a very long time. I take it in a glass of half and half milk and kefir first thing ( which helps line my stomach for the meds)
Watch this space!
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Lupiknits
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I am just starting on this also. I have Lupus/Sjogren's. I bloat easily so am starting low and slow. Originally used 1/2 cap and noticed a slight improvement in Sjogren's dryness, so I continued. I am up to 3 caps daily, have a fair amount of bloating now, but SLE symptoms seem eased, hope to get to use the sachets soon. Some with UC have used 4 of the DS sachets daily for remission, so it can take a lot and a lot of money too. For those interested, I experiment a lot and managed to get my hands on a drug called Sirolimus that was trialed on a small group of Lupus non responders, the results were great, so I had to try it and have to say it works really good, felt normal in 3 days, but stopped since I want to try natural treatments, especially since I may have to use it for many years. Will keep updating here also, maybe this is what we have been looking for. Wish each of you the best!
Hope you'll let us know how you get on with sirolimus...I see it's a macrolide with immunosuppressant qualities & is FDA approved for certain organ transplant patients to prevent rejection + for a rare lung condition...and is used alongside myco sometimes. V interesting!
I would like to ask those that have been using VSL #3 or any other probiotic, have you at any point while increasing the dose had an increase of symptoms, basically a worsening or herx. but eventually got better? I have been increasing the dose pretty rapidly since my Ubiome results showed I was very low in lactobacillus and bifidobacteria, so I am trying to bring them up to a healthy level and hopefully achieve a lessening of symptoms in the process. Thank you for any info you can provide!
I haven't really felt the need to try and do things too quickly, I think doing anything too quickly is a recipe for intolerance and discomfort. I would suggest patience and don't try to push things too far, too fast. Even at the slow pace I've been going with this product, the first week was a big adjustment, as I mentioned in my own thread on the subject.
Don't rush. Let your body adjust in the way it will - which isn't always the way we wish it would!
I agree with Silvergilt. Try to build up slowly., however desperate you are. When I found kefir and started taking that, it caused a lot of uncomfortable wind. My problems are nothing like as bad as others have, but it all still needs a little adjusting to.
Thank you for replying. I know you are both right since I feel the same way too. I have had severe bloating to probiotics for as long as I can remember, I guess my gut is a mess! I was doing well at 1/2 cap, then moved up to 1 cap and was fine also, so I went for broke and increased to 3 caps. I was OK the first 2 days, but when I woke up on day 3 was really bloated. My autoimmune symptoms have improved a bit more, so the additional VSL is helping, just need to take it slower as you said. My tests showed that Lactobacillus and Bifidobacterium were next to nothing, so I am hoping that bringing them up to normal levels will make a substantial difference. I am certain all these autoimmune diseases are due to gut imbalances and the only way to deal with them is to get the bacterial balance back, that is why fecal transplant work so well for various issues. I have used various different strains over the past several months and made some nice improvements, but have more to go. I really want to get back to a normal life and immune suppressant are not really the best method if you want a nice long life. You guys are on the right path, just keep on with the probiotics, you may need to take a few sachets daily to get to a good point, but this is they right way to do it. Thank you and good luck in your quest!
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Migraines and so so tired 
Prednisolone diary 3 - steady on 4.5mg
Just get so angry at the smallest things..
Such a princess so how do I cope with using a scooter
So many symptoms..is this usual? 
