Hi team
Only me
So bloody tired 💤
For no reason keep trying to push though it but getting dressed today was a achievement.
Anyone ever feel like wading through treacle 😓
Joint pain is worse today more like a deep dull stabbing pain and my lymph nodes are swollen 🤦🏼♀️
Any tips on pushing through the tiredness
I have three kids on half term one who thinks he’s a Nijar this very moment 😂😭 xx
I feel like this everyday, I have sjogrens and fibromyalgia. Nothing you can do about it unfortunately.
I had suffered fatigue most of my life, I just thought it was normal. Last year after my pfo ( hole in my heart ) was closed I started noticing how much better I was waking in the morning. I also started working on treating my anxiety, stopped drinking a nightly glass of wine, started physical therapy daily, ate more fiber and started practicing better sleep hygiene around that same time. Screens, tv, phone or tablets off at nine pm. Read a book at 9 pm, Meditation at 9:45 sleep by ten and up at 6 am regularly now even on weekends and vacations. Routine adherence helps me tons.
I do not know if it was the heart or my life style fixes or a combo of all of it but I am no longer suffering fatigue and what a difference it makes. Talk to your GP about your fatigue to rule out the health reasons, like heart issues or sleep apnea but also mental, physical and good sleep hygiene changes can make great improvements aswell. Good luck. Xo
I try to do short bursts - activity then sit as often I have to go to work despite the tiredness. Rope the ninja in, get him to run round doing stuff. Reward him. Maybe bribery but saves your energy. Lots of fluids as it seems to help and i find eating carbs gives some energy. But don’t over do it. Do only what needs to be done. Good luck
Hello I don't have lupus but two other autoimmune diseases one of them is well known to cause fatigue and I read this article a long time ago when I was first ill.
This article made me cry because it so summed up how I felt it was such a relief I had been feeling so alone. I showed my family and it has helped them understand and they helped me more, they still forget sometimes but it is better.I have found fatigue so frustrating but fighting it has never helped me so I have learnt to accept it and just do what I can, in fact that doing that has improved my quality of life.When my children were younger and I was still trying to work I bought help someone to clean was the best investment I ever made!Now I have had to give up work and my children are grown up life is easier.Try to save your energy to do things you enjoy.Jane.
What a great article. And with clinicians' comment including Julia Newton, now Professor Newton, who diagnosed my neutrally mediated hypotension at her Newcastle orthostatic intolerance clinic. A wonderful doctor and person. But, of course, I also take on board the view offered by the medic that squash is the answer. Doh! Off course! Squash. If only I had any eye to hand and ball co-ordination, then I'd be fine....
No direct solution but my fatigue has become much more manageable since taking hydroQ.
I’m still riddled with aches and pains but I can cope better without the fatigue and brain fog.
Are you still on hydroQ? X
Yes I’m okay and then I have a. Good week if I can’t get up xx
You will in time gain your own knowledge on what helps you cope better.
Until then you have so much support here.
Listen to your body.
Rest when you need. I know it’s tough being a mummy too.
My son is a constant noise making machine 🙉🙉🙉. Sometimes it annoys the life out of me as it really hurts my ears. I’ve learnt to walk away and slip up stairs just to take a breather
Xx
I had a period last week when the overwhelming hot weather broke where I was sleeping for a ridiculous amount of time and still feeling shattered. I thought I might be in a flare or that my body was being attacked by an infection of some sort.
Then I realised something that had changed in my routine. For a few months now I had been making it a habit to eat about 3 satsumas daily. But recently the quality has not been so good as the season is ending. I had stopped eating them as they tasted watery. But i hadn't boosted my vitamin c in other ways. I was very achey and tired and also sneezing. We then bought some oranges and i ate 2 or 3. By the next day I was already improved and now have moved from satsumas to oranges and my energy levels are better.
Try either taking vitamin c or getting a supply of oranges and see if it helps.
Thanks everyone will give all these ago thankfully it seems to go in cycles so hopefully will end soon but I will try all recommend
Thanks again xxx
So unhappy!
Internal tremor (buzz/jangles)
Feel so useless, bad day today now too!
Am I having a flare?
