Butterfly Pigmentation Lines: Hi Guys I have... - LUPUS UK

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Butterfly Pigmentation Lines

7 Replies

Hi Guys

I have discoid lupus but my symptoms are unusual and wondered if anyone has the same or similar symptoms/ experience. I have dark skin and have butterfly pigmentation around the eyes, chin and lower cheeks. Medication increases my pigmentation so I use natural remedies. I have indented pigmented lines running from my inner eyes running across my cheeks which draws attention to my face. Research suggests it is tear troughs lines and cosmetic collagen fillers as a solution. I am against fillers and know that these pigmented indents in my skin are caused by lupus. Doctors and specialists failed to address this problem and it has become worse and more obvious. Grateful for your response as this affects my self-confidence.

Depressed

Jazz

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7 Replies
Gizmok9 profile image
Gizmok9

Hi I don't have discoid lupus, sle but I have bad pigmentation on my face and know how you feel . Sun seems to be my problem... even wearing factor 50+ vigorously on holiday I have a beard of it! And up my cheek bones speckled. Doctors not much use so far, wouldn't even prescribe sun lotion. I've got rheumatologist in few weeks so on my list to quiz, it's really clear at moment. Trying to use make ups to tone it down...

in reply toGizmok9

Hi Gizmok9 - I try using makeup as well but that can be a pain. Was hoping someone found something that worked to eliminate pigmentation discolouring.

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK

Hi Hidden ,

Which treatment were you taking for lupus which seems to have affected your pigmentation? Was it hydroxychloroquine? Did you discuss other possible treatment options with your consultant?

If the pigmentation changes affect your self-confidence, you may wish to look at skin camouflage? We wrote a blog about it last year which you can read at lupusuk.org.uk/skin-camoufl...

Gizmok9 has also raised an important point about light sensitivity. Are you taking sufficient precautions against exposure to UV? If you need more information about this we have another blog article at lupusuk.org.uk/coping-with-...

in reply toPaul_Howard

Thanks for the information.

Appreciated

Gizmok9 profile image
Gizmok9

I quizzed my rheumatologist and getting referred to a dermatologist now so see what they think... so fingers crossed...

in reply toGizmok9

Let us know the outcome. Best of luck.

Gizmok9 profile image
Gizmok9 in reply to

I eventually saw a dermatologist and have been diagnosed with PLE ( polymorphic light eruption) and melisma. Main verdict is avoid sun as much as possible even uv lights and to be covered by clothing with a hat... (I love the sun too! 🙃) I was given suncream on prescription👍 a steroid cream for if my PLE when comes up and differin gel for my face. I've joined a melisma group on Facebook too. I now use sunsense face tint factor 50 under makeup everyday and a mixture of estel Lauder maximum cover and amazing cosmetics concealer to hide... hope helps... 👍 think lack of sun ☀️ im in scotland too, has really helped fade mine too. I use these two products too which I think have helped fade it.

Kojic acid soap and demologic microfilant with differin gel each night.

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