Blood spots?: Does anyone else with Lupus get what... - LUPUS UK

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Blood spots?

HannahLupus profile image
12 Replies

Does anyone else with Lupus get what looks like blood spots under their skin??

I am quite sensitive to UV/sunlight these days not sure if this is a result of that. I went to the beach on Saturday the sun was in and out and I was wearing factor 50 protection when I got home I had these spots on my chest even though I was covered wearing a high neck top.

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HannahLupus profile image
HannahLupus
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12 Replies
TEDDYM profile image
TEDDYM

Yes, I have them all over my body. A dermatologist told me they are Campbell de morgan lesions. Best wishes xx

Barnclown profile image
Barnclown in reply to TEDDYM

Campbell de Morgan lesions are also known as cherry haemangiomas...medics tell me these are harmless and common in the general population

I have always had cherry angiomas, but they tend to appear on different parts of my body and they look a bit different compared to my small vessel vasculitis spots, which have their own special characteristics....and do reflect SLE inflammatory process

🍀😘 coco

JL1w profile image
JL1w

Hi yes I had these on my chest and arms when I was away in the sun last year - I did also suffer with the strangest sensations to the sun , like the feeling of rain on my body and tingling , I have been told since it is a sign Lupus is flaring in reaction to the sun - I just then ensured those areas were not in the sun at all - best wishes

Barnclown profile image
Barnclown

Rheumatology tells me that my version of this is typical SLE-related small vessel vasculitis...here are 2 links that might help:

This is about Campbell de Morgans:

en.m.wikipedia.org/wiki/Che...

About SLE-related vasculitis spots:

en.m.wikipedia.org/wiki/Pet...

🍀😘 coco

Cas70 profile image
Cas70 in reply to Barnclown

Thank you so much for this post - I have these (Campbell de Morgans) under my arms - it is such a relief to find they are very common and nothing to worry about. Best wishes Cas70

Barnclown profile image
Barnclown in reply to Cas70

👍👍👍👍

Mine worried me when I was younger...it was a big relief to get them in perspective

I am glad I did show them to a gp once, though....am always careful about self-diagnosing

Glad to help 🍀😘

Cas70 profile image
Cas70 in reply to Barnclown

I had shown them to someone. A very unfriendly lady Dermatologist just tutted at me and said "try Betnovate". I didn't.

Barnclown profile image
Barnclown in reply to Cas70

oh my gosh.....

Well, betnovate is what I use on my vasculitic rashes...

What is is about some dermatologists.....😏

Cas70 profile image
Cas70 in reply to Barnclown

A really lovely Rheumy who is sympathetic (!) to all auto immune probs - suggested it is because most Docs know very little about a chronic illness that has so many overlaps of symptoms and it is their insecurity showing when they fob us off. I thought he got it in one there. We have to find our own way thru - thanks be for this website. I have to say after being loaded up with meds mostly to counteract probs with original ones I have gone to a recommended and registered Medicinal Herbalist and I am feeling so much better. No painkillers or side effects from Hydroxy! I know this is not for everyone but .....

Barnclown profile image
Barnclown in reply to Cas70

👍👍👍👍 well said!!!!

Wishing you every best wish...hope you'll keep us posted

🍀😘🍀😘

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK

Hi HannahLupus ,

If you need more information about different protection that is available against UV, you may be interested in our blog article at lupusuk.org.uk/coping-with-...

HannahLupus profile image
HannahLupus

I had an appointment with a dermatologist last week, he said that he believes it is a result of the cyclophosphamide, last infusion 3 weeks ago. The spots and bruising I had are now starting to fade so I think he was right

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