Sores on nose and ears: For the last 2 years I've... - LUPUS UK

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Sores on nose and ears

Lynne5 profile image
7 Replies

For the last 2 years I've had sores inside my nose, a few months ago I started getting sores on the outside of my nose, these have now settled down but i now get sores in my ears. I also suffer with mouth ulcers. Has anyone got any ideas as my dr isn't being very helpful

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Lynne5
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7 Replies
Paul_Howard profile image
Paul_HowardPartnerLUPUS UK

Hi Lynne5 ,

Oral and nasal ulcers are a common symptom of lupus. Have you been diagnosed with lupus? Are you currently on any treatment for it?

We published an article a few years ago which collected people's tips for coping with mouth ulcers. You may find it helpful. You can read it at healthunlocked.com/lupusuk/...

Lynne5 profile image
Lynne5 in reply to Paul_Howard

Hi Paul, thank you for your reply, I haven't been diagnosed with lupus. I am going to the Drs again on Monday with these symptoms, up to now he hasn't been very helpful. Thank you for your link I'll check it out now.

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK in reply to Lynne5

Do you have any other symptoms?

If you need more information about lupus and how it is diagnosed, we have a free pack which you can request or download at lupusuk.org.uk/request-info...

bexxy profile image
bexxy

Hi Lynne, the mouth and nasal ulcers are part of my many ailments at present including fatigue, pain and aching joints, headaches, light sensitivity, bowel problems and chest and spinal pains, I'm to see my rhematologists in next few weeks as my gp believes I have lupus and am in need of immunosuppressents. Do you have other symptoms to progress your case with your gp, if so keep a diary of what ailments crop up. Hope you get the cooperation from your gp that you deserve, all the best.

Lynne5 profile image
Lynne5 in reply to bexxy

Thanks for your reply. I was diagnosed with polymyalgia rheumatica with temporal arteritis 12 years ago, so have problems with my muscles and headaches. I've been on steroids for 12 years. Like you I also suffer with bowel problems. I also have osteoarthritis. I am seeing a rheumatologist on Tuesday so hopefully will get some answers then

margaret3 profile image
margaret3

Hi it is very interesting I'm diagnosed with mixed connective tissue deasise sorry for spelling. And I had sores in my ears since 2006 and sores in my nose for 2/3 y. I don't know if to go to GP? You are the 1 person I'm met with the same symptoms as me. Would be nice to find out more...

Lynne5 profile image
Lynne5 in reply to margaret3

Thanks for your reply. I am seeing a rheumatologist Tuesday so hopefully will get some answers. Unfortunately my dr has not been very helpful with all these sores and has just been prescribing cream for my nose for the last 3 years.

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