Hi I'm Zoë,
I've just joined this site - So after 16 years of problems, it seems I am close to gettting a diagnosis of lupus. Until a few weeks ago, I had never even heard of it (apart from the odd episode of 'house' but never paid attention. Ha) I've been reading a lot about it, and everything just seems to make sense now. I'm feeling really scared, but also a sense of relief. Every time I get poorly, I get worse and have new symptoms. This week I have the rash on my face for the first time, my scalp and ears feel like they are sunburnt, my legs and hands have swelled up with a nice rash to go with the swelling, and my wrist and ankle joints are very sore and stiff. I'm a single mum of two, a full-time university student, and volunteer worker. There's still so much I need to learn about lupus. Has anyone got on advice on how to simply manage day-to-day life without making themselves poorly?