does anyone one here get blue toes

[minka]

does anyone on here get blue toes like and the bones in the bottom of feet feel broken

[Polina44]

Hi,

Yep I get blue toes! Have done since being a child ... 😨

[Paul_Howard Partner LUPUS UK]

Hi minka ,

Have you noticed whether there is anything that triggers this (such as exposure to cold)? Have you looked at whether you may be experiencing Raynaud's phenomenon? You can learn more about this at sruk.co.uk/raynauds/what-ra...

[minka in reply to Paul_Howard]

Thanks Paul all this came on cos my ankle seems to twist and I sort of walk over incorrectly to big toe and it was cold 2 weeks ago when I whent for a walk but since I lost my rum woman and taken of predistone I have been struggling with All sorts of pains through walking incorrectly and hospital don't seem to be taking me seriously regarding pain problems so I really need a rumi person but all I got is someone who is going to have a look in my knee another problem to deal with later

[EOLHPC]

Yes I do. My consultants tell me my blue toes (and feet & hands & lips) are due to lupus & Sjogrens- related raynauds + vascular problems (blood pooling, dysautonomia) related to my vascular type ehlers danlos hypermobility.

[Hidden]

Been checked out for Gout? Your big toe looks swollen is why I ask? I had this pain in metacarpals when my Sjogrens was imitating RA. Now I get white toes daily as part of Raynauds. Mainly happens in winter months. Blue is hallmark of Raynauds I would say but pain sounds more like inflammatory arthritis to me. The two often flare up together - for me anyway.

[minka in reply to Hidden]

All bones sort of feel like they are drying out on me to consider this came on from just small ankle pain to twisting knee and hurt ankle and big toe now it seems to have progress to hip hands throat and gums and teeth it really is hard walking with this and tingling leg and I have no rumi doctor now I think due to cuts Or something Nothing showing in bloods at all on this thing

[0105luppyabby]

Yep I get raynaurds this does link with DLE lupus. My fingers go purple and very sore in winter.

[patientpat]

Hello Minka,

I don't get blue toes but my fingers go blue,especially the forefingers and index ones. also the top of my hands has been affected. Before I was diagnosed correctly, I was told it was Raynauds disease., which it isn't.

I was referred by the Rheumatologist to a Vascular Surgeon who told mesyndrome it was 'Blue Finger Syndrome', a rare disorder of the circulatory system. He said very little is known about it but suspects it maybe linked to the Lupus and Antiphospholipid Syndrome that I have.

It has affected the joints in my fingers which are extremely painful and swell up.

[minka in reply to patientpat]

well i kieep trying to walk on it to keep circulation going but got a bit of siatic now with walking on this thing, thanks for replying can be quite worrying going no better just worse trying to walk on it and big toe hurting and blue

[ayesham]

Hi

I get very dark fingers in cold,not really blue but very dark ,which turns red when I immerse hand in hot water .

[minka]

hi ayesham i get worried about putting in hot watter cos i dont want more chil blanes on them i feel like doing it but best not thanks for reply flairing a bit more today back of good leg giving me siatica last night as i try to walk on it not let up is their