Anyone Gets Toes Like This?

[Lupiknits]

I've been in the shower, and, as usual, it's a struggle to waem up. An hour later my toes look like this. Does anyone else get this? My Raynaud's is getting worse and yet, by morning my feet will be burning hot.

[Nikki246]

Yes it looks like Raynauds which can be a symptom of lupus. I take blood pressure tablets twice a day which help. Do they look like that at other times when they are cold? Mine went dark blue/black when I had it bad and was painful when the feeling started to come back.

[Author_ink]

Yup my feet and your feet are twins😄😜 I thought i had a severe case of athletes foot fungus. No matter what product i would buy nothing works. Every time I shower or soak in a hot bath my feet looks uglier. I hate lupus!!!!👿😈😠

[Barnclown]

This looks like what I consider my most relatively 'normal' colouring...of the rainbow colours my feet & hands show off around the clock no matter what the season. And yes, this isn't a "healthy" coloration: I agree it's v raynauds...I think of it as "Cyclamen blush white" 😉.

The other colours my feet & hands display daily are:

Sickly bruise-like grape greeny-purple

Deepest lavender blue

Dark bright rose red

Moonlight petal white

And sometimes I get what I call: Allsorts....which is ALL these colour-ways mixed up at once on hands & feet....OH JOY (not)

THANK GOODNESS my feet & hands are so numb that, to a degree, in my 60s I now feel slightly less of the sensations that go with these signs of vascular dysfunction

Am sure you can tell I'm determined not to let these awful colour shifts upset me 😆. But my husband keeps begging me to put my feet away...which hurts, sort of ...prob is, all year round the simultaneous raynauds freezing & erythromelalgia burning are so dreadful that I am constantly having to wear sandals & can only manage the v lightest weight socks without the feet burning up 😏...and i often don't even wear gloves when i used to now....it's CRAZY coping with simultaneously freezing & burning feet + hands ( + nose & ear flaps) 🙃😜

At Rheumatology last month, my hero rheumy offered me iloprost infusions for the raynauds...I told her I'd think about this...cause previous raynauds treatments (nifedipine...I only lasted 3 days on this vasodilator) have made the erythromelalgia inferno permanently even worse

Am vvvv much feeling for you LK....and all of us....this stuff is no fun...but, if i don't joke a bit, it would be tears too much of the time....

TIP TOP idea to take pics of your 🌈 colours: my rheumy always asks me to bring pics in for Show & Tell! I do find shower &/or bath time tend to bring out the most vivid hues

😘🍀😘🍀😘🍀😘 coco

[Lupiknits]

Thanks for the replies. I do have secondary raynauds which is getting worse. Sigh, back on the phone for the "urgent" rheumy appt which never arrives. My feet are getting worse than my hands - burning red hot but if I squeeze them, waxy dead. Don't have quite all of Coco's colours of the rainbow but it's quite exciting to look! 🌈

So far, no meds available because my blood pressure is low.

[chrisj]

My toes go deep purple in the shower then back to normal once I'm out and dry again. I have primary sjogrens, mild SLE and raynauds

[johare]

As above. My hands and feet are generally cold, white or blue. Then once they do heat up ie in bed burn and are painful. Cold painful is better than hot painful.

[Barnclown in reply to johare]

Agreed 👍👍👍👍

[Lupiknits]

Definitely agreed 👍👍👍