Lupus

[djsema]

Good morning,

Has anyone had to have infusion because of their lupus flair up ? And did it work? I'm so fed up of being like this 😯

[LupieMani]

Hi djsema. I have read a few messages on instagram and in online forums from people who have, and most seem to agree that there was an improvement after infusion.

Like anything else, what works for one may not work for the other, but you won't know until you try...

Hope you get some relief soon x

[djsema in reply to LupieMani]

Yes that's true what works on one person may not work for another. I will go on Instagram and have a look and thanks for your advices X 😀

[Barnclown]

I hope the infusion helps you a lot, djsema.

What med will be in your infusion? Is it rituximab?

Courage...please let us know how you get on

🍀🍀🍀🍀 coco

[djsema in reply to Barnclown]

Hi Barnclown

don't know what I'm going to have. I'm currently taking six steroid at the money. I will let you know when I going to have the treatment and how it works.

Thank you x😀

[Paul_Howard Partner LUPUS UK]

Hi djsema ,

Do you know what type of infusion you have been offered? Are you currently on any other treatment?

If you need more information about lupus and the skin, we have a booklet which you can read and download on our website at lupusuk.org.uk/wp-content/u...

[djsema in reply to Paul_Howard]

Good morning,

Mr Howard thank you so much for the web site information it's very helpful. At present the medication that I'm talking is hydroxychicoroquine ( 1 tablet one day and two the next every day ) and prednisone 6 tablets because of the severe flare of of the skin. I'm waiting for a phone call from the doctor to find out what infusions I'm going to have.

[Paul_Howard Partner LUPUS UK in reply to djsema]

No problem. Please make sure you post again when you find out what infusion you may be having because then other members will be able to share their experiences with you.

[djsema in reply to Paul_Howard]

Good afternoon Paul I'm just letting you know that I have started the treatment for my skin. I having it buy infusion it called Rickman. I'm having the next treatment in two weeks time. I was looking in the mirror this morning and I can see an improvement in my skin. I will keep you posted. Please could you forwarded this to my followers

Thanks Doreen

[Paul_Howard Partner LUPUS UK in reply to djsema]

Hi Doreen,

That is great. I hope that the treatment helps you to feel better.

[djsema in reply to Paul_Howard]

Thank you. 😀

[djsema]

Yes I will definitely keep you ALL posted on what's happening. And thanks again Mr Howard 😀