Burning hands...??

Does anyone else have 'burning hands' My palms are absolutely burning, left one worse. Ive put it in cold water and it seems to have eased it. A couple of mornings ago when I woke up my left hand felt like it was getting tiny electric shocks...?? (on the palms)

[goingaroundthetwist]

Hi Suebuck56,

yes, I have this almost all the time. In fact I have been awake since about 1am with the pain from this and all the other stuff and the burning, they are just cooling now. I get the electrical feelings also. Do not know if this is part of the raynaulds or part of lupus elements from my uctd. My legs and feet burn up also. Hope you are alright. Sorry I don't know what the cause is. I've mentioned this to the Doctors, but have never had a definitive answer. I have 1hour and 35 minutes until I have to get up! lol

Goingaroundthetwist

[XliddybX]

I think it's from the sun. I get it if it been sunny while I have been driving. X

[BellaC79]

My rheumatologist has queried Erythromelalgia with me, as after activity I get red burning feet and the palms of my Hands too. By very careful never put burning hands or feet in ice water as this can damage nerves I've been told by the neurologist. I find walking on a tiled floor works for me to calm it down. Also changes in temperatures cause it for me eg. Washing dishes I will get a symptoms.

[Tickledink89 in reply to BellaC79]

I was diagnosed with Erythromelalgia when I was 7 in my legs and feet but have started getting the same burning in both palms ...hope it isn't the same thing

[Barnclown]

Cath_c gives you good advice. Your symptoms do sound similar to ET (erythromelalgia). This condition is unusual and not well understood. I've been trying to learn about it since 2011 when mine was diagnosed. There have been only a few posting ?s like yours here since this forum started. I found slightly more experienced pople on the raynauds & scleroderma healthunlocked forum (you can go there via the communities selection tab above). The R & S assoc website has good info re ET too, because this condition can occur simultaneous to RP & S. eg my ET is imultaneous with RP, both secondary to SLE. My version is tricky to treat, cause hat helps the raynauds (RP) makes the ET flare (eg vasodilators like nifedipine). Are you on nifedipine? If yes, talk to your drs ASAP about these burning symptoms. Good luck, take care

[Zulka87]

Hello I have the same problem and U need show that to your gp he will give You some creams and they helps . As well when You wash dishes U should use gloves . I use cream Daktacort and its helping little bit spacially at night time . I had that burning fingers at night time and now its better after two weeks of using that cream . Xx

[Hidden]

Thanks for your replies, I wasn't in the sun and I did have gloves on, 2 pairs!! This morning it has eased except for my thumb and forefinger. The ends feel slightly sensitive.... I will mention to my doctor

[letslaugh63]

I have this for months as well as very cold hands and feet and seem to go between the two but mostly hot and fingers tips very sensitive to all sorts.I was being treated for frozen shoulder and tennis elbow for months now they have been ruled out I know not related to burning hands but symptoms came togehter.they now saying trapped nerves in spine but I honestly don't think they have clue as my legs are also involved now waiting for appointment for chronic pain clinic,think I might have to go through every Hosp department before I get any diagnosis. X

[Hidden in reply to letslaugh63]

Its such a pain to be 'listened' to

[letslaugh63 in reply to Hidden]

I know suebuck56 as did tell at time it was both arms but left was worse but they didn't listen.rhuemy didn't want to know really but he did notice how red/mottled my palms were but didn't say anything.I'm now struggling at work as arms getting weaker(work in a pub)can't carry shopping or go clothes shopping properly as can'tlook through rails can't hardly tie my hair back for work,sometimes rely on work makes to do itx

[pattismith]

For during the night you can buy a cooling gel pad that you put under your sheet , maybe that will help ?

[Hidden in reply to pattismith]

Thank you, it was just my hands, for me anyway. Does seem to have eased off now but they feel tingly x

[cloggy73]

This sounds very familiar, I too get very hot, burning hands and feet, especially it seems at night. I'm afraid I've done what I shouldn't and stuck them in the freezer (I'll refrain from doing this from now on!). A cooling gel has sometimes helped but only a little bit. The SLE I suffer from is mainly neuro so maybe there is a connection. I'm seeing Rheumy tomorrow so I'll mention it. I'll check out raynauds forum too, thanks for heads up.

M

[cloggy73]

Hi me again, I looked up erythromelalgia and I think my neurologist had already picked up on my symptoms as I am being treated for peripheral neuropathy and seizures with venlafaxine and anti-sezure drugs. The venlafaxine could help with the burning sensations, although clearly I'm having a bad patch. Maybe it is worth mentioning to your rheumy's neuro's. / GPs

M

[Hidden in reply to cloggy73]

Yes Im going to the Gp in the next couple of weeks so I will mention it to him Thanks

[sandwiches]

i get burning feet when i stand too long or walk a lot. My feet swell. i only get relief when i elevate my legs. Maybe it's fluid retention which i have.

[lemonface]

I get the burning hands and feet but usually only at night. I got myself a `chillow pillow` and it really helps They come in different sizes I got a small one for my feet. Its a pvc covered wee mattress type thing that you fill with water when you first get it and then roll the air out and that's it ready for use. You only need to top the water up each summer. They r available from the Personal cooling company tel [phone] if any one wants to try one.

I was wondering if the burning issue is a hormonal thing. When I was a primary school (a long time ago lol) I always remember my hands and feet burning, then thru my teenage years and beyond they were always cold I was dxd with Raynauds, this was before I knew I had Lupus. Then when I got to 48/49 the burning came on but it is mainly at night time. I would be interested to know if any one has had the same age related caper.? I put my feet under a cold tap before I go to bed and along with the chillow pillow that seems to do the job. Peppermint oil in vitamin e cream is very good too for hands and feet. I try not to go down the drug route if I can find something natural. Good Luck !

[Hidden in reply to lemonface]

I've never had it before BUT I'm usually cold!! So the rest of me is fine and if I get too cold that hurts my joints terrible. It has eased off now but I dont know what set it off in the first place. Im along your lines if I can find a natural way I will, but alls well now...hopefully it was just a one off

[Hidden]

Thank you for the info I'll have to look into that Sue x

[rad123]

Hi I'm new to lupus. I was diagnosed with discoid 2 days ago and am waiting for ANA results due to having many symptoms of SLE too. My right hand is burning and has sharp darting pains which also happens in my forearm too.

[tansy-ann8]

This will sound strange, but I am so pleased I read your post. I have been ill since Christmas Eve and feel so ill, nauseous,weak, not wanting to eat and on top of that I started with hot, burning, itchy hands - followed two weeks later by the same problem with my feet, and like you I usually have very cold extremities. So pleased I found this site, don't feel quite so alone with this weird problem. GP took bloods today!!! Would be interested to see how you progress.