Back on steroids at 20mg per day for 7 days then to be reduced to 5mg gradually over the next 3 weeks. However, I am also on immune suppressants - Cellcept at 500mg twice per day. I HATE steroids as they scare me to be honest, my Consultant has advised that many dislike prescribing them, but as I had had a little blip I may need to go on them for a further 6 months. He mentioned that once I have been on 5mg for a couple of months and if my immune system has calmed or gone back into remission, that my Cellcept will be increased by a further 500mg for a further couple of weeks/months. I am concerned again with regards to the side affects that these also have, but i DON'T have much choice this moment in time. My Consultant advised that once the increase in Cellcept, (which can take a few weeks), is in my system that I will be taken off this and put onto another immune suppressant which is normally used for women who are trying for babies who have Lupus. He said that this drug is known to have less side affects, especially over long term use, as I will most probably be on them for life. For the life of me, because it was such a lot of information in such a short period of time, I cannot remember the name of the drug. Does anyone know what this is called? Are any Lupies currently taking this medication and how do they feel about this? Also whats the length of time that a Lupie has been on steroids for as I am concerned about any long term affects of being on this drug. Any advice or feedback would be greatly appreciated.
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