PET Scan & Diagnosis. : Have any of you had a PET... - LUPUS UK

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PET Scan & Diagnosis.

Sheole profile image
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Have any of you had a PET Scan. Was it used as a diagnosis aide for auto immune. It's been a couple years of inflammatory markers in blood tests. Lots of tests but this one is in a couple weeks. Not sure if this will help. Thoughts ......

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Sheole profile image
Sheole
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Chris21 profile image
Chris21

I had a PET scan a few years ago, I was told it is the best of all scans?! I already had a diagnosis of lupus but I had some unexplained 'lumps' and difficulty with respiratory. Lumps fortunately just ended up inflammation of the lining but I did end up with diagnosis of fibrosis because of lupus.

As far as I know this scan can look at everything so it may show up an area in the body that is causing problems, at least it hopefully will rule out anything they think may be wrong.

Hope it all goes ok.

Sheole profile image
Sheole in reply to Chris21

Thanks Chris.

Daisy1991 profile image
Daisy1991

Hi

I had a pet scan, my rhumy was checking for inflammation, he thought I had vasculitis, I didn't.

I think that they can pick up a most things, but if you have high inflammation markers like I had, then most probably they are looking to see where the inflammation is in the body.

Sheole profile image
Sheole in reply to Daisy1991

Hi Daisy, yes they are checking to see where else inflammation is besides lungs. Hoping for a diagnoses after test. But sounds like that could be wishful thinking. Thanks.

Daisy1991 profile image
Daisy1991 in reply to Sheole

Well all I can say is I am still waiting, no firm diagnosis as yet, I hope you have better luck. I hate limbo land!!! I would rather know one way or another

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