Palpitations: Does anyone have heart palpitations... - LUPUS UK

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Palpitations

fishers63 profile image
12 Replies

Does anyone have heart palpitations? I get this every day, my heart seems to beat really hard, it feels like I can feel my pulse all over my body. Almost like a panic attack without the panic!

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fishers63 profile image
fishers63
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12 Replies
tremarel profile image
tremarel

Yes got it all the time it's horrible . Really hard to relax when ur feeling the pulsating all the time. I've had every test going & my heart is fine. Even had it jump out of rhythm few times . Know exactly how u feel. Take care have a good day . Hayley

Elle-26 profile image
Elle-26

Hi fisher63, yes i do and also get inernal shaking. My gp put it down to irregular heartbeat. I cant sleep most nights with it. Wakes me up and if im out in the garden for more than 15 mins, they start. The palpitations have worsened this yr. Horrid experience xxx

Cann profile image
Cann

I find I get this for lots of reasons - when I am hungry, too hot, over-doing it or stressed. It can then cease when I eat or drink - dehydration can cause it for me and tiredness or too long in the sun, although I don't spend more than a few minutes and don't sit in it. I have had it on and off for many years and it is in my records as tachycardia and arrhythmia. I do my best not to worry about it, as I now feel if it was really serious I would have dropped dead by now!

Daisy1991 profile image
Daisy1991

Yes I get it aswell. It is I horrible feeling, I feel as though I can feel ever pulse in my body beating and I also feel like it is a panic attack without the panic, like you and I get really hot and I get at mild fever of between 98.8 and 100 degrees. I feel like I need to have a drink of something really cold and sit under a fan to cool off. Mine is brought on when out in the sun too long or when I eat too many sugary things for some strange reason that I dont understand.

whatsit profile image
whatsit

I get this heavy beat maybe only ten times but makes me want to jump up when it happens had ECGs nothing untowards

PMRpro profile image
PMRpro

If anyone has palpitations do NOT allow your GP to dismiss it as "irregular heartbeat..." Yes, that is the lable - elt for some forms you require medication to reduce the risk of stroke. It is greatly undervalued in the UK - I don't know why. When my atrial fibrillation (caused by the autoimmune disorder I have) was diagnosed here in Italy I wasn't allowed out of hospital until I was stable on an anticoagulant to reduce that risk.

Be firm...

Vasuna1 profile image
Vasuna1

How long has this been going on? Have you had a physical lately. How is your thyroid ?

MandaM profile image
MandaM

Yes I get extreme breathlessness, bad chest pain and palps. I can't even turn over in bed sometimes without an attack of this. Has been going on for years. A few weeks ago it disappeared completely and my chest felt very light for a change, it was great! Now its all back again. Currently under a second round of investigations but so far nothing found.

Ckohl profile image
Ckohl

Fishers63, yes I have the same thing. When it first happened I thought it was a earth quake but no one else felt it. It happens to mostly when I'm laying in bed. I asked my RA Dr and she I needed to talk to my gp. It just seems strange to me that a lot of us are having this so I would think it might have something to due with our disease.

Mimi1950 profile image
Mimi1950

This is terrible I get this, too! My doctor says it the prednisone.

PMRpro profile image
PMRpro in reply toMimi1950

Mine tried that too - it wasn't, it was there before pred! It can be due to AI disease but if you have arrythmia/tachycardia it doesn't matter WHY, it needs investigating and managing.

Mealfredo78 profile image
Mealfredo78

I do also

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