I feel so down hearted today , I was diagnosed with SLE ,Sjogrens hypo thyroid and early stage myeloma cancer last August and I feel I have been doing quite well plodding on just taking it day by day with Rheumy adding in more treatments and medications when needed and then over the last few days fatigued was becoming overwhelming and aches were getting worse but ....then Bang !! Today I have never felt so ill since diagnosis it feels like the worse case of flu Iv ever had , everything aches from my foot to my head . I have a very sore sticky eye , strong stingy urine, sore throat , sores on tongue , legs feet arms and wrists hurt to move ! I don't know what to do I was started on cyclosporine about 8 weeks ago and remain on all the usual meds - could this be the cyclosporine ? I am limited as to what additional pain relief I can take I already have morphine patches, morphine solution and paracetamol when needed - is this just another flare and I have to just ride the storm or do I need to see a doctor as I am now on immunotherapy - will I not be able to fight this off on my own ? Feeling very low I think everything has finally hit me and Iv suddenly realised what these illnesses mean and what Iv got to face in the future ..... Thank you for listening , xx
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