I'm currently awaiting an official diagnosis, seeing specialist next week with blood and urine results. I have 9 of the 11 criteria and had symptoms for quite a few years - recently diagnosed with Hashimoto.
About 4 weeks ago I had my first rash flare on hands, arms, shoulders and few on legs and back... they started as blisters, then raised red rash, then they turned to what looked like bruises and now after 4 weeks it looks like scars. However the blisters are starting again but I have avoided the sun, wear hats etc...... as its my nose, cheeks, chest, hands and arms....... could it be the UV lighting directly above my head at work??
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MagsaTrini
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thank you for reply. although various other symptoms have been coming and going for years................... with regards to rash /blisters its strange how I have sat under the same lights at work for about 10 years, gone to beach / pool for years and now all of a sudden BOOM!
I'm originally Scottish but for past 26 years lived in Gibraltar (British Overseas Territory at Southern tip of Spain)
very much taking one day at a time and feel blessed to have this site to learn from
I am 62 and have always been affected by lighting right back to my late teens!!
At that time though I could sunbathe for hours and get a tan, the vanity years!!!
But just this year I have started to get large red weals on my face even with factor 50 on and also keeping out of the sun as much as possible.
I am also Scottish but am quite dark with brown eyes and used to never burn in the sun. Now every part of me itches if in the sun. I was so surprised how it just suddenly started.
I have been on steroids for five years but was never badly affected by sunlight till now. X
Thanks for your reply, I'm feeling very grateful to hear from others. Im very fair, blonde and blue eyes, burn easy, it's gonna be tough living in a hot climate as the test can ge to me to. Get a different weird rash just from shower. Yes I'm also surprised how it's just started
Hi. What you said about the shower made me remember, I had this weird rash during a flare (legs and arms) and it got very red during a hot shower, but faded in cold temperatures. I suggest you to take pictures and show them to your Dr., it could be nothing, just be sure to report every symptom.
Some people with lupus are sensitive to certain types of artificial lighting, so this could be potentially what is causing your rashes. You can read more about the effects of different types of lighting here - lupusuk.org.uk/eclipse/a-gu...
You may want to take action to avoid exposure to these lights to see if it helps to alleviate your symptoms. Try covering up more and wearing sunscreen indoors if possible. There are filters available for fluorescent tube lighting to stop he emission of UV. You can find out more about these and other protective products here - lupusuk.org.uk/eclipse/prod...
If you need more information about lupus and how it is diagnosed, we have a free pack which you can request or download from our website at lupusuk.org.uk/request-info...
Thank you sooooo much Paul, the websites are very useful as I can pass to my HR department, the film that wraps around the uv lights Tubes seems to be a cheap, quick fix.
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