Please can anyone answer Any one take this please - LUPUS UK

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Please can anyone answer Any one take this please

Minka1 profile image
12 Replies

Today I have red hot feet a numb bum like sitting g on me bum bones aching knees and upper back. I have not had a poo for 7 days proper this poo business is worrying me even though I have been taking laxative s

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Minka1 profile image
Minka1
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12 Replies

Minka I have this constipation thing all the time now - have had it for 8 months despite previously being very normal in that department. Are you especially anxious just now perhaps? I think it's part of the inflammatory process for many of us here but stress doesn't help. I find Laxido (a softener powder you put in water and drink) helps a bit - and I eat loads of prunes and roughage too. It makes me horribly bloated and I had to fast and take laxatives for 36 hours for a colonoscopy yesterday afternoon. Not an experience I would want to repeat but no colon cancer at least. Best of luck getting it sorted - some people swear by magnesium Cytrate taken last thing at night. Twitchy

Minka1 profile image
Minka1 in reply to

How long can u go without going it is probably stressing me out

in reply to Minka1

Have you tried Senakot or Laxido yet? I would see you GP if it continues into next week - you may need a suppository.

thegaul profile image
thegaul in reply to Minka1

My son went 43 days not an ideal situation

sarahsch profile image
sarahsch

Hi Minka1.

I think constipation can be caused by vascilitus of the bowel, but there are other causes. In my case I want to go, but simply can't push enough. It is very distressing. I tried a number of laxatives but they upset my stomach. The last time this happened it came with other inflammatory symptoms & a short course of prednisolone sorted all.

Hope this helps,

Sarah x

minka profile image
minka in reply to sarahsch

I have stopped my preference cos it made me bones worse it was drying me out like rigamortis my feet have been cold then red hot and I have a grumbly colon so it must be vaculitus

thegaul profile image
thegaul in reply to sarahsch

Sarah you can use laxido/movicol it softens the stool or lavage

Squeeker profile image
Squeeker

Hi

Have u tried pysillium husk? Sorry I may not have spelt that correctly. It's tasteless and mixed with water daily it 'eases the passage' it does not harm u and it is safe to take all the time. Just be near a loo the first time in case... Good luck.

misty14 profile image
misty14

Hi Minka

Sorry you have such bad constipation, can make you feel awful. What laxative are you using?. I find Movicol or Lactulose very good as there gentle. You can be prescribed them by your GP. I agree with Twitchy that if you haven't been into next week you need to see your GP. Prune juice is also very good and drink plenty of water. Eat lots of fruit and hope you go soon. X

minka profile image
minka

laxative senakoc think they r called tryed some prunes last night still no go just bad tummy this morning now red hot feet and sweat like hell last night.

babsis profile image
babsis

Hi, I have struggled for years with the same thing and chronic stomach cramps. I am on 4 Senna, 4 Ducolax and 1 Movicol a day 2 morning each 2 at night 1 Movicol, but still couldn't go.

My step daughter who is celiac gave me an article about Lupus and Fibermirlaga Ana autoimmune disease, I spoke to my Rheumatologist and he said there fine line between being and not being celiac. I asked about a gluten free diet and he said try it for 2 months and then we will see what happens, well 8 weeks now and I feel brilliant, no swollen body, no skin ulcers which last year was terrible, no bloating no stomach cramps, no constipation, no bad runs, and I have reduced my laxative intake also my Morphine has been reduced. So I would say speak to your doctor, I have taken out of my diet Wheat, Barley, Rye and Oats and I feel so we'll and look it to. Hope this helps and it works for you

thegaul profile image
thegaul

I always had SLOW bowel before anticoagulation but now my youngest son is in a terrible state started with abdominal pain age 7 and constipation now 13 and crippled because of it recently didn't go for 43 days - at the time he had 4 enemas 240 movicol (laxido) klen prep and it still took 18 days to work - had a colonoscopy and pain amplified now by 50% he's crippled because of this but no diagnosis just oh you have a slow bowel the term constipation doesn't cover this

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