maggielee had posted some months ago about SCLE and it's been on my mind. I did reply to her and ask Paul to help, but couldn't tag him in for some reason.
This is the link to maggielee's post.
Here's my question.
I have been thinking about your reply to Maggielee, as above, for a while now. Maggielee and I have meet and discussed our diagnosis a couple of times.
The information you have given above is more than any doctor has offered me, by way of explanation, at any time. When I was first diagnosed with SCLE the rheumy and dermy told me I had Cutaneous Lupus. But my own reading told me that SCLE was in fact an overlap between DLE and SLE. And now my diagnosis has been amended to SCLE with systemic features. In fact my GPs always write SLE in their notes. My symptoms are certainly not limited to skin involvement and I am unwell all year around and not just in the summer, as they originally suggested would be the case.
I have managed to obtain the letters from the Consultant Dermy I saw twice, after my diagnosis of SCLE back in 2013 and still am non the wiser as to which type of SCLE I have. I have also had a biopsy at the nape of my neck but still am not sure which type I have. It seems to play a part in how your disease will pan out. Am I right?
How will I know whether I have psoriasiform/papulosquamous SCLE or the annular/polycytic SCLE?
I look forward to your response.