holiday: i am going to brave the sun and hope my... - LUPUS UK

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holiday

carollesley profile image
11 Replies

i am going to brave the sun and hope my dry rash skin will cope i am going morocco is there any advice any one can give me thanks

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carollesley profile image
carollesley
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11 Replies
popsmith1874 profile image
popsmith1874

Plenty of sun cream and enjoy

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK

Hi carollesley

I hope you have a wonderful holiday. We wrote an article about holidays with lupus for our blog last month and compiled a load of people's tips in it. You can read it at lupusuk.org.uk/going-on-hol...

Nixta profile image
Nixta in reply toPaul_Howard

Great info - many thanks!

creaky profile image
creaky

If you are looking for a sun cream for your Face, I find no7 factor 50 tinted suncream the best for my skin. It stays put and isn't too greasy.

Have a great holiday

Tiras profile image
Tiras

I am in the sun a lot. I live in the southeast part of the U.S. In the state of Alabama. We get a lot of sun and have hot summers. So staying out of the sun is something I can't do. I use coconut oil as a base, I let it absorb in my skin, then saturate with 70+ SPF sunscreen. It will not completely stop Lupus rashes/blisters but it slows them down enough that I can live with it.

I will not let lupus stop or control my life. I will do what I want and when I want. I do take the best method to protect myself.

LIVE LIFE TO THE FULLEST!

Enjoy your holiday or as we here in the U.S. Say enjoy your vacation!

Tiras

"The Barefoot Gardener"

Nixta profile image
Nixta in reply toTiras

I'm with you! Focus on the good things and do what you can to slow things down. Always focus on future projects and ENJOY your garden and have fun.

MargaretGail profile image
MargaretGail

Hat, cotton scarf, parasol and factor 50+. Steroids as a back up.

Wendy39 profile image
Wendy39

Yes, for me Ego Sun Sense Factor 50+ sun cream (on prescription from GP) and the same make "daily face". Plus sunglasses, hat, parasol, rash vests - these enable me to do beach days with my young children, as they offer factor 50+ protection - I have the long sleeved ones with a little collar, to protect my neck. I sit in the shade wherever possible too. I hope you find a way of enjoying your holiday whilst being safe too.

charlie007 profile image
charlie007

I use factor 50,I never sit out under direct sunlight as I would get extreme fatigue and swollen glands so I usually use a parasol.I enjoy walking around going for meals.When you arrive find out the nearest health clinic you may not need it but you are better to know were it is.In the past my GP gave me a prescription for an antibiotic if you get an infection I found this helpful.

I live life to the full but I am careful ,have a great holiday.

Nixta profile image
Nixta

The Lupus blog is brilliant and very helpful. One of the other things I did, recommended to me by another Lupus patient, was to invest in new high tech UV50 shirts. You can find these at outdoor, snow, climbing shops. they are perfect for keeping cool in hot climates (Morrocco for instance :) and protect your skin. Some are specifically designed for sun sensitive people - and have an extra curved piece on the sleeve to protect the back of your hands. Beautifully designed too and light fabric. Very effective. the other thing I did was invest in a UV50 rash vest for swimming covers your whole upper torso from wrist, neck and hips. You can find these on line in your country I suspect. I sourced the rash vest at torpedo7.co.nz and the shirts at kathmandu.co.nz ...I am in NZ but am sure you will have similar in your country. But pace yourself (ie: dont do too many things in one day or walk too far) and have a BRILLIANT time and lots of fun on your holiday.

Enjoy

Nixta

carollesley profile image
carollesley

holiday went well only had 1 funny turn of passing out and my skin dry and little itchy but not to bad thanks for all your advice

but get back home and my pip reconsiderastion been denied so got to appeal more stress

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