just started having headaches coming of Prednisone - LUPUS UK

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just started having headaches coming of Prednisone

inxs1212 profile image
7 Replies

hi iwas put on 55mg of Prednisone,and have come down 10mg a week and am now on 5mg going on to 5mg every other day,what i would like to know is are the headaches and nose bleeds a side effect to this as they have just started and wont no for sure until i see doctor in 2 days,thank you

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inxs1212
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7 Replies
happytulip profile image
happytulip

Maybe you are reducing too fast?? I get really bad pain in my joints and a bad headache if I reduce quickly. Everyone is different but I am reducing by 1mg per month. Hope you get sorted soon!

in reply to happytulip

I agree, reducing too quickly does produce flare symptoms , I always get nose bleeds when I flare. 55mg is a lot to come down from, Img a month is right, quicker and you risk having to go back up again to stop the pain and nose bleeds. Best of luck.

adrienneioannou profile image
adrienneioannou

That is a fast reduction. I have started to reduce from 6 mg and it is going to take over 8 months to do it as do a month of 6/ 5 then a month of 5 then a month 5/4 ....... try slowing down how you are doing it.

Mainshah profile image
Mainshah

Thst is a fast reduction as I was on 10mg for sometime and nw I'm down to 7.5 and I'm getting headakes but I'm waiting for my body to to tolerate it because I wona come off steroids ASAP

willowwag profile image
willowwag

Sounds to me like your tapering way to fast in the later stages of the tapering. You say your taking 5mg every other mmmmm I have never been told that. I have always down 5mg on day then 2.5mg then 5mg then 2.5mg thats for 3 weeks then 2.5mg one day then 2mg the other and then 2.5mg etc...thats for 2 weeks then 2mg every other day for a week. then you should be ok. Your body hits the wall if you taper to fast, and you get really bad head aches, flu like symptoms and you feel as though you have been hot by a bus.. Good Luck x

willowwag profile image
willowwag

I forgot to say you should be using this tapering system from 10mg to 7.5 then 5 to 2.5 then 2mg coming down such a big dose like you are you must feel really ruff.

Minka1 profile image
Minka1

Hi I have been on 5mg of Prednisone for years this stuff is position my feet r tingling knees hurt this 10 weeks ago now and I thought I had got rid of it for 2 years now verry bad stuff for bones

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