LUPUS UK
21,163 members16,759 posts

Cancer & immune dysfunction link + new survival guide

This link just pinged in from medpage. It's helping me understand more about why rheumatology & immunology researchers have been telling me that my previous malignancy is implicated in my version of immune dysfunction. And also why my multisystem clinics are all monitoring me so closely for cancers. At 62, after a lifetime of SLE...I actually like these sort of insights, because: information is power

medpagetoday.com/Rheumatolo...

If you're dealing with cancer, there's a great new book out by long-time top uk cancer consultant Karol Sikora, The Street-wise Patient's Guide to Surviving Cancer

🍀🍀🍀🍀 coco

8 Replies
oldestnewest

Excellent coco, thank you.

Meat and drink to many

👍🏼

PM

💙

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Yes 👌😉 food for thought 🍀😘

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Hi Barnclown

Thank you for sharing such an interesting article. Knowledge is definitely power and it takes a lot of the worry away if the worst happens!. Good luck for Monday's Consultation. Hope your having a good weekend. X

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Too true 👍...e.g. I know I watch the fly on the wall GP + A&E documentaries because the exposure to all that happens familiarises me with the health system etc generally helps me to keep calm & carry on. Thanks 🍀😘

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Hi Barnclown

Your very brave to watch those programs, glad they help. I feel I have enough health in my life that I don't watch them. I can see how the programs are helpful for navigating the NHS system as long as they're an accurate portrayal!. X

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You're not the only one: my husband asks me to watch the GP + A&E documentaries when he is out with his mate at the pub for their weekly chin wag (and I think that he, like you, is a very brave patient - having done more than ok working the health system re his early onset NHS crohns).

Watching these documentaries is just my way of coping. So far I haven't met anyone who else copes this way!

And I share your scepticism: I once asked my good GP what she thinks about the GP documentary. She said it isn't an accurate portrayal...I replied: you're telling me 😜!

My feeling is that, despite my reservations about the accuracy, the GP documentary is important to me because it helps motivate me to feel I can at least expect & push for more from my GPs than the bare minimum (v important in my case, because during the 40 years before my infant onset lupus was recognised, I'd enabled my GPs to take advantage of my naïveté & trust...now I know all too well how much of a Jemima puddleduck I can be, and how badly my health has been affected as a result)

🍀😘🍀😘

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We rely on you, our astute Jemima puddle duck ( beware the Fox 😅).

Excuse it's early morn 🙃...full quota of silly beans.

PM

🐄

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😂😂😂😂😘🍀

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