Phenindione shortage

[tiredmum]

I have just received a letter from my doctor referring me to a haematologist as Phenindione is due to reach critical levels in the new year.

I can not tolerate warfarin as it gives me sickness and diarrhoea, I did spend a year taking enoxaparin injections. I am not sure whether I want to take a new drug that no one really knows much about.

I was just wondering whether anyone else is having to find a replacement therapy and if so how they were getting on and what are you taking etc

I have Hughes syndrome and Lupus so take quite a lot of medication each day as it is, I know it's going to be trial and error again, but I am really not looking forward to the change.

Thanks in advance

Nic