Hello everyone, I have been on various doses of prednisolone since diagnosis 20 years ago. Even though I'm on cellcept and plaquenil I have never managed to get completely off the steroids, just recently I got down to 3mg daily but bloods started going a bit haywire. My rheumy then did a synacthen test and telephoned me a few days later to say I failed it and so would never be able to go off steroids but rather would have to increase the dosage to 5mg daily. She also said as my body was no longer producing cortisol anytime I was ill, involved in an accident, or in severe shock I would have to increase the dosage and if ever I wasn't able to take my tablets due to for example tummy bug I must go straight to A&E for a steroid injection!
So as you can imagine I'm really disappointed not to be ditching the 'devil's smarties' and a bit nervous about all the other stuff, so would really appreciate hearing from anyone else who as been through the same.