I've tried lots of different approaches to treating my lupus. I feel like I've now gone as far as I can using diet, herbs and natural remedies. As you know I've also tried Hydroxy but couldn't continue due to side effects (terrible nervousness and stomach discomfort) and taking steroids was a disaster (they made me suicidal).
I've been flaring since the beginning of February, with awful joint pain initially, and since then I've been in bed a lot due to the flu-like aches, fatigue and horrible burning pains in my tendons. This makes walking and using my hands difficult due to the pain and weakness. I feel at the end of my rope. I need to be well - we are just about to buy our first house and I need to be well enough to cope with the move. So this leaves me with 'what next?'
A friend of mine has been diagnosed with MS this year and she's been taking LDN since March and is already feeling a lot better on it. She has more energy, feels buoyant, and her MS symptoms are already reversing. She knows someone who has MS and was in a wheelchair in 2006 before she started taking LDN, she has never needed the wheelchair since. I also have a friend with lupus and fibro - she says she can't do without LDN, it has improved her quality of life greatly with reduced pain and more energy.
I have now called the scottish pharmacy who have referred me to a private doctor, Dr McCall, who will call me next week for my consultation and get me started on LDN. The first consultation is £30 and the drug costs £18.50 per month. I have to pay for a prescription every 3 months which costs £25 each time.
I thought I'd tell you what I was doing so that you could follow my progress - I know there's a lot of interest in LDN on here. I'll let you know how it goes.