Painful feet: Does anybody else suffer with pain in... - LUPUS UK

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Painful feet

chandlermandy profile image
15 Replies

Does anybody else suffer with pain in the soles of their feet? Mine are really painful which then radiates through my legs. Any advice?

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chandlermandy profile image
chandlermandy
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15 Replies
Calafia profile image
Calafia

Hi Mandy, Mine were in pain mostly due to the the big toe joint being super inflamed. So felt like someone had a lighter burning the sole of my foot around my big toe. Of course, every step hurt too. However, doctor didn't feel I had gout. I started eating non inflammatory foods and and bunch of other steps I've posted on here about and now the burning and pain is gone. It took a couple of years so it's been a long haul! Hope you find relief. All the best, Jane

Natura profile image
Natura in reply to Calafia

Tart Cherry supplement will break down Uric acid also around toe. I have done this and seen improvement too.

Calafia profile image
Calafia in reply to Natura

Thanks Natura, if it pops back up, I will add that in. I haven't had the issue for months so fingers crossed. :) Appreciate the tip!

bestbuddy profile image
bestbuddy

Strangely, when I am in a flare, I can be lying in bed and one of my symptoms is that it feels as though someone has taken a cane and whacked my feet; so painful and sore at times.

chandlermandy profile image
chandlermandy in reply to bestbuddy

Best buddy, thank you, that's exactly how I feel! Do you have any remedies or is it just rest and keep taking the hydroxy?

ijeasike profile image
ijeasike

i have it too. last year i had plasma exchange and rhetoximab that helped. but now it has started again and it is worse when i wake up in the morning and step out of bed. my consultant prescribe amytriptline i was on 10mg then increased to 20 to 50mg and now increased to 75mg. talk to ur consultant

take care dear

georgie63 profile image
georgie63

Hi, yes I'm always getting pain in my feet, I never know what to do with them either.

I'm on amitriptyline and hydroxychloroquine but it still doesn't help them.

Another thing to add to the list to see the doctor with.

Xx

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK

Hi chandlermandy,

You may find our factsheet about Lupus and the Feet helpful? You can read it here - lupusuk.org.uk/images/pdf/1...

chandlermandy profile image
chandlermandy

Thanks everyone. Xx

bestbuddy profile image
bestbuddy

I had my vitamin B12 and my vitamin D status checked...I was deficient (or extremely low) in both. Since I have supplemented with sublingual spray, the feeling in my feet has vastly reduced, though all my other joint problems remain the same. I think it s a matter of carrying on with the Plaquenil and noting down all symptoms for the rheumatologist. Perhaps it would be worthwhile being proactive and asking your GP to do a test or a re-test to rule these issues out.

I hope you too find some relief soon.

notoverthehill profile image
notoverthehill

Yes I have now been diagnosed with Fybromyalgia fo;;owing shingles and spinal cord infection I have Lyrica which can help Its like getting electric shocks from feet to top of legs

etc90 profile image
etc90

I was told by my neurologist (not the rheumy or foot doctor, btw) that there are certain nerves in the feet (or something like that) that are directly effected in Lupus patients (and MS). I have same problem. Periodic rest and elevation are helpful, but there are times when it's just unbearable. I'm sorry

Whathappned profile image
Whathappned

Oh yes every day. Initially it was pain and stiffness in the morning and now it's whenever I have rested. A friend who knows loads on natural remedies suggested its a build up of toxins in the feet.

I also have tight muscles (everywhere) in the morning so I was wondering if it was due to this and agrivated by the foot being extended in bed which shortened the calf muscle causing the calf discomfort. Having a pillow propping up the sheet and quilt at the bottom of the bed has taken that away a little but I still wake stiff but not as much pain. It's worth a try. Otherwise it's worth doing a bit massage on gem that always feels lovely. My friend does reflexology and I'm going to get her to do that. Otherwise it really improved when the rheumy gave me steroid injections to reduce the inflammation. There isn't any visable signs in the feet but it's there.

Also soak your feet in Epsom salts, it's supposed to help with aches and pains in muscles and joints

Take care x

Hi - I have RA and small fiber neuropathy and also a Morton's Neuroma in each of my feet and these cause me a lot of pain in my feet intermittently. I'm under a neurologist currently and keep wanting to ask him how I can have pain in my feet, legs, hands and arms at the same time as quite a lot of numbness. It seems a bit of a contradiction in terms. I have had severe RA swelling and pain in my feet but this is different - it's invisible in that my feet aren't swollen at present. My toes are starting to move apart from the neuromas - which feel like electric currents running through two of my toes at night and if I wear shoes that are a bit too tight and ping when I put my right foot down just in the toe pad. I think this kind of pain/ discomfort is often about inflamed tissue/ nerves with autoimmune diseases. A rheumy trained podiatrist would probably be the best person to help you if you can find one.

Hi friends. I have RA and tested ANA negative for Lupus. My main doc is not convinced that Lupus is out of the question though. I have recently been having terrible feet pain. Mostly in the ball of my foot under my big toe. It apparently is common in RA and other inflammatory joint conditions. I also have pain inside above my heel behind my Achilles' tendon when I try to sleep. Some days it's impossible to walk without cushioned shoes and my cane and the swelling is significant. Looks like an egg on the ball of my foot. I see the podiatrist next week. Hope you all find some much needed releif and have a happy new Year.

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