I am a medical student and in the process of writing a project on systemic lupus erythematosus, however I stubbled upon a couple of questions that require the insight of an expert...hopefully you.
So here it goes:
-Do you find that you get any support from community matrons? Or specialist nurses?
-How often do you go for a follow up with your rheumatologist? Or GP?
-Do you use support groups often and do you think these help?
-What is your biggest fear as a lupus sufferer? e.g. are you weary of going outside when it is sunny?
-What was your first reaction following your diagnosis? Were you scared about something in particular?
Many many thanks!