Hi everyone, I was on hydroxychloroquine for 30 years (from 17 to 47), then last year I was diagnosed with Macular Degeneration which came totally out of the blue, as I'd never had any previous eye problems. All the docs said it was not related to hydroxychloroquine, however I'm not so sure after reading studies about the drug. I therefore made the decision to stop it. I'm also on azathiaprine, prednisolone and warfarin (I have lupus and APS). My rheumatologist was supportive of my decision. However at my appt in Feb I saw a different doctor who was more or less insistent I took it, but didn't seem to want to answer my questions about my concerns re my vision. I didn't go back on it but this weekend for the first time ever my joints are stiff and I'm beginning to wonder if this is because I've stopped the drug. I'm also wondering if it might just be down to the warm humid weather and would like to know others experiences. Also if anyone has had similar experiences are there other drugs you've been given instead of hydroxychloroquine?
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