Letter to my MP re Hydroxychloroquine: I don't post... - LUPUS UK

LUPUS UK

31,716 members28,082 posts

Letter to my MP re Hydroxychloroquine

lupime profile image
10 Replies

I don't post very often but thought folks might want to see the letter I have sent to my MP about hydroxychloroquine and C19. I will let you know if/when I get a reply. Maybe other people on here could do similar? The letter is below

Dear ..........

I am one of your constituents and have a concern regarding the proposed possible use of hydroxychloroquine in the fight against coronavirus C19.

I have Systemic Lupus, a serious auto-immune disease and rely on this drug to help stabilise my symptoms. Without it, I have a flare of the disease which makes me very poorly.

Whilst I and many other people in the Lupus, Rheumatoid Arthritis and auto-immune community are pleased that this drug may help with the C19 outbreak, we have concerns that wide scale use of hydroxychloroquine may cause problems in accessing this drug for our usual prescriptions.

The NHS is under stress and it does not need an influx of auto-immune patients needing its services arising from a flare of their disease caused by a lack of their medication. Online reports of countries stockpiling hydroxychloroquine are already occurring. At the best of times, this medication already has recurring supply issues, particularly for patients like myself who need a particular brand (Zentiva) as we are intolerant of other brands.

Can you as my MP assure me that the government will ensure that patients like myself will not be affected by supply difficulties of hydroxychloroquine? I would be grateful if you could draw my concern to the attention of Matt Hancock and the health department. Having an auto-immune problem at this difficult time is stressful enough without worrying about hydroxychloroquine as well.

Thank you for your time in reading this. I look forward to hearing from you as soon as you are able to do so.

Written by
lupime profile image
lupime
To view profiles and participate in discussions please or .
Read more about...
10 Replies
Joni2011 profile image
Joni2011

Good idea. I asked for a repeat prescription on Monday, and the chemist hasn't got it yet. I'm a bit worried...

ExtremeDuvetDaze profile image
ExtremeDuvetDaze

What a good idea Lupime,

I have 60 days worth but feel very concerned about it’s availability when it’s time to put my repeat prescription in six weeks time !

I really hope we’re not affected by this!

Stay safe 🌺 x

Ironmytherapy profile image
Ironmytherapy

I think it’s a brilliant letter. Well done 👏🏼

Great letter, I am going to steal it and send to my MP too

lupime profile image
lupime

That's fine steal away! If anyone else wants to use it to send to their MP - feel free. The more the issue is highlighted the better.

masford profile image
masford

Great letter Lupime, I have copied and pasted it to my MP. I too am very worried.

Prunes profile image
Prunes

Just written to my MP too. Will update you if I hear back.

lupime profile image
lupime

Great! The more MPs are aware the better.

Tiexx profile image
Tiexx

Great letter Lupime, thanks for sharing and letting us use it. I’ve written to my MP too.

MoominMomma profile image
MoominMomma

Thanks for sharing your letter. I’m going to send a letter now to my MP.

You may also like...

how harmful is hydroxychloroquine? plaquinil..

they don't have lupus etc... If you don't have a disease..or that disease, then what is the drug...

Hydroxychloroquine (Zentiva)

many of you I struggle with some brands of hydroxychloroquine and was advised to take the zentiva...

Zentiva Hydroxychloroquine

but it kept coming back unable to supply zentiva. I know zentiva have stock so what now? Anyone...

Hydroxychloroquine

Received letter from rheumatologist today , Immune system disorder because of positive nuclear...

Hydroxychloroquine toxicity

rheumatologist). Have any of you in the Lupus world experienced this and what help did you get ?