newby - Hydroxy - week three and still struggling.....

[Tessi]

Hi everybody

so as a starter, I'm currently got diagnosis of fibro, CFS, trigeminal neuralgia since I was 30. 16 years on (chostochondritis),tennis elbows, sore feet and writst and am struggling with photosensitivity again - berloque dermatitis, PMLE and solar urticaria- I can actually be out in the sun with suitable protections for a short while but I feel very 'unwell' afterwards for days. I have more problems with UVA light indoors with reactions within minutes.

meds i also take longterm are - temgesic(buprenorphine)for general pain relief), aroxia(for chosto), pregabalin(for neuralgia), prozac(for being fed up being sick!), modafinil (for energy).

I know this is a pretty impressive cocktail, but it's been honed after years of pain management and I tolerate this quite well usually. Over the years I've been on most of the anti-convulsants and so am well versed in how awful it feels in the first few weeks, but with the hydroxy I don't feel dizzy, stoned or overly nauseous etc - I just have nothing, my body is like a damp rag doll.

I've been put on hydroxy after a review of Ana test results from 2 years ago (1:160 speckled), I'lI get recent blood test results in two weeks time in Salford Royal.

im used to being ill, feeling rubbish, but im a girl who likes a plan (I know, not my most helpful attribute)so if anybody can share any info on this drug I'd be very greateful

Tessi

ps apologies for spellings etc am half asleep dong this. plus this is a great site, seems filled with genuine helpful people