New to this but saw site and so much info that I ... - LUPUS UK

LUPUS UK

32,125 members28,443 posts

New to this but saw site and so much info that I m hoping for some help... desperate for some kind of diagnosis!

Alex97 profile image
1 Reply

I ve had various symptoms for 6 years. First vist of many to GP 6 yrs ago with stopped periods (41 at the time) and severe indigestion. Results after tests were gone through menapause( count 85) and helicobacter pylori. To cut a long story short I was eventually refered to rheumatologist after raised ESR (38) after diagnoses of 'old age', 'depression' or just all in my head. Rheumatologist in all fairness run loads of tests after suspecting lupus with symptoms I have( hair loss, indigestion, constipation, face rash, fatigue, joint pain) but all tests came back fine. Diagnosed with UCTD and put on hydroxychloroquine, within 2 weeks had a severe reaction resulting in 'Steven Johnson Syndrome' so can no longer take. Last summer developed raynauds, last winter developed allergy to cold resulting in cold hives and last couple of months possible return of periods after 3 years? ( count now 45-waiting to see gynecologist) and now nails have changed - had dry, brittle, breaking nails for some time but now developed thickening of skin under finger nails and nails coming away from bed- looks disgusting! Internet search looks like nail psoriasis? Rheumatologist seemsoto have lost interest because of blood tests being ok and has refered me to dermatologist.

So sorry for long winded post but I really am stating to get depressed and think maybe it is all in my head! Would appreciate some help

Written by
Alex97 profile image
Alex97
To view profiles and participate in discussions please or .
Read more about...
1 Reply
Tracylove profile image
Tracylove

I don't know if you'll get this reply now after so long but I'm wondering how you are getting on?

Not what you're looking for?

You may also like...

No diagnosis just sadness and frustration. new to this site

Hi I'm just wondering if anyone has any advice on what I should do next. I have had pain in wrists...

What is the difference between SLE and Autoimmune vasculitis?

Hi everyone! I was diagnosed with SLE last year when I developed Hepatitis and came down with...

Shame you have to pay to get answers!

HI! Well, after months of trying to my GP(s) to take me seriously about my symptoms, I'm having to...

I am SO pleased to have found this site!!!! This is really long....and even if no-one reads it-I will just feel better for writing it down!

I have finally been diagnosed with LUPUS after years of suffering joint pain/fatigue......first...

Lupus rash?

My official diagnosis is UCTD but the rheumatologist has used the words lupus and Sjögren's...