As I wrote in episode 1, I am trying to taper my daily prednisolone to zero after a year of treatment starting at 20mg. Although my lung inflammation has benefited greatly in this time, I have developed severe daily episodes of sweating, tachycardia, extreme fatigue, nausea and shaking.
So my goal is to reduce by 0.5mg every 2 weeks, getting rid of these symptoms without jeopardising my lungs.
The past 2 weeks have been a really mixed bag. The first few days were about average. Then i had a few days of real improvement, when I was able not only to potter about the house without discomfort, but I could walk up to a mile or so. To have a few days without the sweating, nausea etc was a relief.
But on day 12, after another walk, I had another severe episode and yesterday was bad all day. Today too has started badly. Because the symptoms show such a clear daily pattern (best in the morning, increasing fatigue and hot flushes during the afternoon, easing at bedtime) I anticipate another day sat with a cold flannel draped over my head, watching 1950s films on YouTube and the birds in the garden (its not all bad!)
Tomorrow, it's down to 4mg. A luta continua!