bleeding after passing urine: anybody else had... - LUPUS UK

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bleeding after passing urine

poodlegal profile image
9 Replies

anybody else had bleeding after passing urine? happend for 3 days on and off,no infection,no pain,stinging etc,my gp belives it is to with my lupus nephritis and spoke to a kidney doctor who agreed so she will not send me for anymore tests however my lupus nurse and head of rhum think different and are keeping me waiting while they argue,just as i think im getting use to one thing another comes along :-( keep reading and thinking terrible things,cannot find anywhere that says nephritis causes actual blood on tissue and surley before treatment i would of experianced this? only ever non visable blood

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poodlegal profile image
poodlegal
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9 Replies
tremarel profile image
tremarel

Arh yeah I've had that, had a kidney transplant sixteen years ago & the kidney showed to be fine also no sign of infection so started looking at my bladder. Had all the tests even the camera put in but hey showed nothing. Unfortunately the lupus does so many strange things. Never any answer for half the things we get. I am so lucky to have so many consultants keeping a check on me & fortunately everything is followed up.

Hope you can get it sorted soon

All the best 2 you x

poodlegal profile image
poodlegal

thanks tremal,glad im not the only one! ive even said to my gp il go private and get a bank loan but she says she wont re me as SHE doesnt think its needed,i know they all think im a nut case as i constantly worry bout my health,you can imagine what i was like when they said i have nephritis, however its great to see lots of people on here with kidney problems/transplants, i am going to pester them to find out what is going on down there,i will keep you posted,all the best to you 2 xx

tremarel profile image
tremarel in reply to poodlegal

Yes please keep me posted but try not too worry too much as it's not going to help with all your problems. They really don't think you're a nut case. It just you thinking that. I've met loads of people & they feel like a fake especially when there's no result at the end of the tests. A number of years ago I had septic arthritis in my wrist that oozed puss for biggest part of a twelve month & even though you could see it all the tests showed there was no growth from the infection. The consultants were very confused by it all. This is how lupus works, in strange ways !

Never mind, try to keep cheerful

All the best 2 you x

tremarel profile image
tremarel

Arh yeah I've had that, had a kidney transplant sixteen years ago & the kidney showed to be fine also no sign of infection so started looking at my bladder. Had all the tests even the camera put in but hey showed nothing. Unfortunately the lupus does so many strange things. Never any answer for half the things we get. I am so lucky to have so many consultants keeping a check on me & fortunately everything is followed up.

Hope you can get it sorted soon

All the best 2 you x

luupysue profile image
luupysue

I have had that and havent had a kidney transplant, I havent mentioned it to the Dr as yet even though I know I should, I put it down to the skin maybe being sencetive, Had it a few times in the past few months, asked for a wee test at Drs they said it was clear nowt to worry about, it sometimes happens after sex as well so god knows whats going on. I will kepp watching your question see if I get an answer as I dont want to keep bothering Drs

Hope its sorted soon x

poodlegal profile image
poodlegal

hi luupy sue,ive had so much stress this week over this, between gp and hospital,they have all decided now not to do anything unless it happens again,im not happy so im going to keep on at them,go to your docs thats what they are paid for! your a bit like my mum she just kept saying if that happened to me id just think it was spotting from period,how on earth do you know its coming from your urethra? i said mum belive me it aint a period! il keep you posted and you make a appointment and keep me posted xx take care

LesJames profile image
LesJames

I get blood and protein and have been told it down to the warfarin I take for Hughes. Are you on Warfarin? A little is expected if you are.

Take care

poodlegal profile image
poodlegal

hi les,no im not,all the docs kept asking me that, i belive thats a side affect,going for tests and scans soon,thanks for the reply x

poodlegal profile image
poodlegal

update,after a month of cocky gp,missing blood and urine tests, my speacilist said she would refer me to a uroligist re passing blood,a mth to wait for that!! really really fed up of my gps,had loads of bloods today,waiting for results to see if kidneys still okish and bloodcounts and dna levels

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