Just joined

[biddy75]

I. Have lupus 17 years discoid but its advanced to sle, i also have vasculitis and small fibre neuropathy, is there anyone here from northern ireland

[kazp]

not from NI but Ive had SLE & DLE from age 9, they both were doanosed at the same time when I was 9 years old.

[biddy75]

How does it affect you

[MargaretGail]

Hi Biddy I'm not from NI either but started with discoid and moved to SLE.

[biddy75 in reply to MargaretGail]

How does it effect you, ive vasculitis and small fibre peripheral neuropathy

[MargaretGail]

I had an interesting transition between the two as they stopped describing it as discoid and just called it lupus then in December 13 it was finally called SLE. My main symptoms are terrible fatigue, insomnia, brain fog, headache, muscle pain, weak tendons, anxiety, depression , kidney failure and some

Lung involvement. Otherwise I'm fine

[biddy75 in reply to MargaretGail]

Goodness i feel for you, are you on alot of medication

[MargaretGail]

Yes I am but perhaps not for long. I was at the opticians yesterday and the Hydroxy and steroids are affecting my eyes. Plus I am two weeks into a new drug which has my stomach in shreds! The GP said to give it 5 days and no more. I had my hopes pinned in it.

[biddy75 in reply to MargaretGail]

IM on hydroxy to. On a stomach tablet also

[MargaretGail]

I've been on Hydroxy for about 7 years and had stomach tablets on and off in that time but now I'm on double dose stomach pills. How do you feel about your diagnosis?

[biddy75]

I only had it on skin until last June now its progressed, finding it hard. U have a good hour and a bad hour constant through out the day, wat bout you

[MargaretGail in reply to biddy75]

I've been off sick since Christmas, but I think I'm starting to improve

[biddy75 in reply to MargaretGail]

IM hoping to get back to work soon, i have a dla appeal in 2weeks

[Shann07]

Hi Biddy yes Im from N Ireland

[Shann07]

Hi Biddy Im from N Ireland welcome to the forum!

[biddy75 in reply to Shann07]

Wat county, in Fermanagh

[biddy75]

Hey sophieh, that's great you are in ni, how does lupus affect you