I HAVE A NUMBER OF SYMPTONS WHICH INDICATE STATIN... - LUPUS UK

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I HAVE A NUMBER OF SYMPTONS WHICH INDICATE STATIN INDUCED LUPUS. IF I STOP STATINS HOW LONG BEFORE SYMPTONS DISAPPEAR?

hope4cure profile image
7 Replies

Symptons include : circular rash on leg, buttock, hip,and face. I also have anti ds dna antibodies in my blood. Finally I have light sensitivity and exhaustion.

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hope4cure
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7 Replies

I have some of those without having ever been on statins

Purpletop profile image
Purpletop

Not usual for statins to cause drug induced lupus - are you sure the symptoms aren't unrelated? What is your doctor saying?

EOLHPC profile image
EOLHPC

For what it's worth: have your drs considered dermatomyosotis as part of your diagnostic mix? As i understand it, there is significant consensus amongst some researchers that statins are contraindicated for anyone with a suspicion of this condition....my drs suspect dermatomyosotis in my case and I am advised to avoid statins.

Wishing your symptoms settle vvvv soon

hope4cure profile image
hope4cure in reply toEOLHPC

Thanks very much for your helpfulnote

tintin49 profile image
tintin49

I am on ramopril and I have a feeling that sle and this drug are not best friends

hope4cure profile image
hope4cure

Sorry about that and equally sorry to say that all I have to offer is my sympathy. Hope you eventually find a solution

hope4cure profile image
hope4cure

This side effect is indicated on the notes that come in the statin box. It is however very rare. Still waiting a diagnosis from dermatologist but I am pretty sure what it will be

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