Night sweating

[loublou]

really suffering these last few weeks with the dreaded night sweats. I expect my avn to wake me up with pain. But finding the sweats a real pest. Any tips? Is the apl or lupus the culprit?

[Slowmo]

Hi, I have SLE but not APS and have the night sweats awfully. Am sat here now shattered as ended up being awake for hours last night due to awful sweats, thought they may have been linked to menstrual cycle, but not the case, they are totally random. GP only offered advice of cotton bedding and nightwear etc.. Sorry I couldn't be more help.

[loublou in reply to Slowmo]

Yes mine I also thought were linked to my cycle but there seems to be no pattern to them. The last couple of weeks have been dreadful.

[Slowmo]

It's a nightmare, I don't know of anything to help or control it, but wish I could it's such a pain. All the best.

[overnighthearingloss]

Havent found anything to stop them from striking but running cold water on pulse points (wrists), when they strike seems to stop them going on too long.

[Natura]

I am so glad I found this site. I thought my night sweats were menopausal... I get them almost every night and in the day, where I feel like my skin is a 1000 degrees. Thanks for the insight. Thought I was crazy. I wear lite pjs and always a t shirt in the day no matter how cold it is and a heavier shirt on top, because as soon as it passes, I am cold. Very annoying...it's a joke now in our house how I throw my clothes off....good to joke about it...makes it easier to handle when you laugh about it..

[loublou]

I never get them during the day. Only in bed. Just seem to be more often at the moment. Not sure whether it is the lupus or apl that is the cause though.

[a_Scot in reply to loublou]

They should be renamed sleep-sweat or bed-sweat rather than night-sweat.

[ what time of day would a shift-worker who sleeps during the day get “night” sweats ? ]

[loublou in reply to a_Scot]

Very clever point

[kazp]

get this on and off ive wondered if its some of the meds I take

[Purpletop]

I've been having these too lately (for the past 2 months). Night only. Drenched and then feeling cold and shivery (of course, given that the sweat cools the body). I used to have them only during flares but I'm not in a flare now and still have them. I'm hoping it is the medication.

[loublou]

I know mine is not linked to medication. Just another one of those lupus things we have

[notoverthehill]

i have had Retuximab infusions over the last two years and once it was in my system I have had only one or two instances of night sweats.It was so bad my grand-daughter would not hold my hand and give me our usual cuddle

.Also the severe muscle pain has for the most part disappeared. Am now a great fan of Rituximab

[joannebond360]

I had sweats in the day and at night, would wake up soaking wet and shivery, since starting mycophenolate they have stopped thank goodness because they are just awful!

[ShannonB]

I went through early menopause and get terrible night sweats when my lupus is flaring. Not drug side effect or menopause related. I used to be confused about these but my rheumy says night sweats are actually quite common in lupus, like low grade fever. Hope they improve for you, mine cycle like everything else seems to.

[Hidden]

I get these too and spend all night throwing of the bed covers then waking up freezing and pulling them back. I also got them with my Autoimmune hepatitis before I was diagnosed with lupus, so perhaps it's a general autoimmune thing. Sometimes in the day I also feel as if my body is heating the entire house!

[Belee]

I too get awful night sweats and I thought it might be early menopause ( I'm 39) but they seem to be completely random and I never get 'the sweats' during the day. Some nights I'm fine but others(like last night) are just awful. I woke with the sheets and duvet completely drenched and I then have to resort to getting towels to lie on for the rest of the night. They can be so bad I can't wear any pyjamas as they just stick to me ( I do have to wear socks (- raynauds) and a hat ( - no hair -) which as my husband says is a great look!! ) I also had really bad pains in my elbows and lower arms last night so am wondering if I'm flaring..... Would also be interested in any tips from anyone.

Xxx

[loublou]

Certainly seems to be a very common thing

[hazelHollingsworth]

I know this sounds daft but I sleep with the bedroom hot enough for me to sleep Without clothes and bedding, it does seem to help. Not saying it works every night, but most nights. Only problem I have had to move out of our bedroom and sleep on my own. Sounds drastic but the only way both of us get any sleep.

[sezzie]

Hi loublou,

I have sle and like you Im struggling with terrible night sweats but I also get them in the day too. Unfortunately the only advice I have to offer is to put a wet, cold flannel on your head and on the back of your neck but I'm afraid nothing really helps. My gp's going to check my hormone and thyroid levels as she thinks I might be perimenopausal. I'm only 38 but all my family have started the menopause in their late 30's however I think it's the lupus as the night sweats only started when the lupus reared it's ugly head. Sorry I can't be more helpful and if you find a solution I would be grateful if you would share it with me. Happy sweating X

[loublou in reply to sezzie]

Thank you. Mine started at 39 too. That was 10 years ago and my hormone levels are all good.

[sandwiches]

i also have avn and get night sweats too. I have to wear cotton night wear even in the winter. I sweat terrible at night, it's like someone has thrown a bucket of water on me! It could be my medication as i have had a transplant or an early menopause which i am also going through. There is nothing i can do about it as i cannot take hrt. Being hot then cold is the worse. Take care.

[Kedaco]

I have had night sweats for a long time now but when yo tell your Doctor you get no reply

[loopy-lou]

I bought a very small fan from Argos that I put on in the middle of the night if I start getting very hot. I have used it even through the winter! I could not be without it.

[Winz]

Hi, I've now had this problem on and off for 8 years. One thing I found which helped was black cohosh. Unfortunately I live in Spain and work in Gibraltar but it's not always easy to get them in either place. May be worth a try

[abby1649]

Did not realize these were so common in Lupus. I am 61 and was diagnosed in Aug 2013. They started 3 weeks ago and only at night and not pleasant. Have not had a flare yet so am concerned this is a start. I see my rheumy in 4 weeks so will ask about it. So far I am comic relief in my house and it does help to laugh about it.