Dear all, this is my first post and as you can probably tell from the title of this I am pretty new at lupus! ! The first time I had heard of lupus was actually only a couple of months ago when my husband and I started watching the House Boxset ( yes I'm a few years behind ) and we had a running commentary during watching it making a joke at the beginning of each episode that it's not going to be lupus.
I was shocked when the locum doctor said that she wanted to test me for lupus when I arrived with a widespread rash around my neck and arms. I was also told that the permanent blush wasn't just my colouring but a classic butterfly? (Ps I am scared of butterflies and moths) Fast forward a couple of weeks and I was told that the majority of blood tests were boarder line but anti dna was abnormal and I was referred to a rhumatologist .... I was told to take photos of the spots so I have a phone full of yucky pics!
So my appointment is on Monday 27th June and I would really appreciate any advice you in respect if what I should expect. ...
Do I need to take anything, how should I dress (will they need to examine me?)
Do I mention previous undiagnosed things like the pancreatic pain (nothing found on scans etc) but get pain everyday and have done for 3 years now?
Do I mention that GP thinks I have folliculitis? Despite not clearing up after wks/month's of treatment and suffering on/off for 2 years now (so embarrassed by this the rash/sores are unbearable most of the time lately) might this be lupus related?
Do I mention the ear canal skin infection that I've had for well over a year? Could any of this be related?
Thanks for reading, any advice will be greatly appreciated,