Rhuemy Appointment!

[Danielle2419]

I had a hospital appointment at st Thomas's with dr d Cruz and everything is apparently going really well to the point where im weaning of my 5mg of steroids and going down 1mg every month. Im just abit puzzled on the fact he said all my lupus blood tests are coming back negative now what does he mean by that.

[lucyloo023]

Hi, I'm in same position at the moment. My doctor describes it as the lupus is sleeping as there is no lupus activity showing in my bloods and they class this as being in remission. I'm tapering down the steroids by 1mg every two months but have to stay on the cellcept, hydroxy etc. I'm monitored at the renal clinic every six to eight weeks where bloods are checked for any change.

Hope things continue to stay settled for you.

Sharon

[Muscatmandy]

Hi, pleased to hear you're doing well at the moment. I'm actually writing to ask how you got the "keep calm blame lupus" logo thing-love it!

Stay well x

[Danielle2419]

Hello thanks and yeah the logo is just from Google I typed in lupus posters and that's what came there are others as well keep calm ones relating to lupus

[poodlegal]

hi metoyou,have I got my wires crossed are you the lady in west Yorkshire? xx

[Danielle2419 in reply to poodlegal]

No sorry Poodlegal im actually based in central London don't worry we all do that lol

[madmagz]

Metoyou, how lucky you are to be having bloods that show you are in remission I am sure I am not alone when I say that is some thing that I hope I will be told when I have my bloods done. I have blood taken each week and hope that one day my symptoms subside and the blood results will show I am in remission. I have been in an agresive active flare for nearly three years now and an hoping that since taking methotrexate for six months and having possitive results once folic acid was added to the equation I might get some bloods that read like yours. I am so pleased for you and hope that it lasts for a nice long time.

Good luck to you

Madmagz x

[poodlegal]

hi metoyou, I just wondered if I spoke to you before as im in west Yorkshire,got mixed up!! when I noticed you had been to st thomas' I wondered if you travelled down there for a private appointment,i was going to ask how you go about it as sometimes you feel the need when you carnt get in to your local hospital,great news all your bloods came back clear im other way way round at mo,really wanted to get the go ahead to try and conceive but its not meant to be yet.....

all the best xx

[juneybells]

great news when any lupus patience is in remission, well done you xxx

[Danielle2419]

Thank you all for you kind replies and push forwards im still young at 19 so look forward to make this remission stage long and keep healthy this is my first remission since being diagnosed from last year so really pleased their is no way for a cure just yet but am still open for that right now its in control and that's the main thing