Hi guys just an update on my rhuemy visit I requested. He was very thorough and really listened to me.He checked out the little sores I have near wrists and ankles and neck,he mentioned he would keep an eye on vasculitis as these are not widespread.He gave me a list of bloods to have taken at my surgery and the results sent to him.He was also very interested about the oral thrush and said when I think it's back it needs to be treated straight away.Plaqeunil is gone from 200mg to 400mg.Can I ask how best to take 2 tabs a day? Dryness is pretty severe so hoping new dosage makes some difference. Thanks for reading.Circles xxx
Return rhuemy visit.: Hi guys just an update on my... - LUPUS UK
Return rhuemy visit.
Good news...thanks....how are you feeling about this circles?
I've been advised to take 400mg hydroxy in 2 evenly spaced doses with food....which has always worked well for me...I've been on 400mg per day for 5 years now, with no probs. But am sorry to say that in my case hydroxy hasn't improved my sjogrens dryness, which is multisystem and severe, although currently sero neg
🍀🍀🍀🍀 coco
Thanks so much for you're reply.I feel OK with this as a few things have not improved on 200mg.I think the rhuemy is thinking maybe SLE now rather than Lupus syndrome anyway he wrote SLE ? on the the list of bloods.We will see if anything comes back in the bloods.Thanks for the advice on the plaquenil I hope it helps.It did make a big difference with the dryness when I started it last year.Hope you are feeling OK yourself. Circles.xxx
Good: so glad you feel OK circles 👍👍 you & your consultant are getting along well figuring your version of this out...am happy for you 😘🍀
Thank you I feel he takes all this seriously and listens.He is private so I am sticking with him for the foreseeable future.He is a consultant rhuematoligist in a private hospital so I see him in his private rooms.Thanks again for your help.Circles xxx