LUPUS UK
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Anyone have any idea?

Anyone have any idea?

Hi

Probably nothing but does anyone know what this is? Started initially a few weeks ago after a period of being unwell. Skin became flaky in that small area then became very red. The redness lasted until yesterday and now the skin is flaking again, also have a small spot on my middle finger. I may add that it doesn't itch nor is it painful it's just there.

Thanks for any thoughts xx

I take that back, right hand now getting red at the same spot and it's itchy 😣

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I have the same sort of problem as this. Started around December time. The skin on my hands have remained red & blotchy ever since.

Symptoms start with numbness or tingling in my hands. No idea what it is at this time :-(

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Thanks Lisalou19

Funny you should mention the tingling, I also had that a couple of weeks ago and also yesterday morning, didn't give it much thought tho

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I’m still waiting for a diagnosis, but this hand problem is getting worse. I’ve had symptoms for many years but the hand one is a new one. My hands get extremely dry once the initial symptoms die down . Sometimes I can’t feel things in my hands but I can move them , it’s quite worrying at times.

Are you diagnosed? If so I would get a track on this symptom

X

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Hi

I have SLE, mild raynauds and mild Sjogrens x

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Wow thats a mix and a half, you poor thing. What ever is happening to my hands is more prominent on the inside palm as per your photo. X

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Well they say variety is the spice of life 😁. It's really weird, doest look like a psoriasis or eczema, I'm at a loss x

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A possible diagnosis I’m looking at is vasculitis. I think the fact that my hands go numb or tingle suggest internal problem causing the dry skin. It’s almost to me like the skin has been burnt x

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Have you had any other symptoms like joint pain, fever, abdominal pain etc? Have you been referred? X

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My symptoms are endless, chronic skin rashes, painful feet, swollen fingers/feet, extreme fatigue, lack of concentration. This is just a few. I was meant to go to see a rheumatologist/dermatologists on 6th June. This has now been cancelled til 4th July 😢. I only got this far after paying to go private. I’m sure I can wait til July but feel like I get 10 steps forward, 50 back!!!!!

X

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That's absolutely ridiculous. I've been so lucky with hospital appointments, it's shocking how many people on here that have such a difficult time x

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My problem is my bloods are normal . Also I’ve never gone equipped with physical or digital evidence. I got a mental health assessment from 1 doctor 😡

This new doctor has seen me twice since January with physical symptoms. He asked my doctors to refer me back to him under the nhs. I can’t complain but I really need to know what’s wrong so I can try and move on and deal with my symptoms. I’m guessing though these illnesses bring new symptoms as time passes x

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Sorry, was driving home. Yes they do as well as overlapping which can make getting a definitive diagnosis very hard. That doesn't help tho when you're suffering and need someone to get to the bottom of it and provide some answers x

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Not too much longer i hope!!! This site is good for me in the way that I can clarify that my symptoms are real. Horrible to see so many others suffering though :-( x

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Yes it is, makes you wonder how some folk cope with such difficulties x

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Please let me know if you see a professional what they think about your hands. You will most likely see someone before I do 🙄 x

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I will do, take care x

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My hands have been very numb and tingly with blotching and tiny blisters for a few years. I have secondary Raynaud’s, small fibre neuropathy, inflammatory arthritis and Pompholyx eczema. I was originally diagnosed with RA but now rediagnosed with Sjögren’s.

When I get this dry, hard itchy peeling patches on my hands it’s generally related to pompholyx eczema I believe. In early stages it peels and then the blisters arrive. It is horribly itchy as the tiny fluid filled blisters arrive.

I do also wonder if I also may have Psoriasis or some type of Vasculitis as I have splinter haemorrhages often on my nail bed when it’s bad. I’m afraid I don’t really ever find answers for my skin issues from dermatology or elsewhere - as my skin is so fair that this often gets the blame, as do allergies and my CTD/ Sjögren’s and high inflammation.

But perhaps have a look at dyshidrotic eczema just in case? nationaleczema.org/eczema/t...

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Thanks very much for the information, I'll have a look

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Hi, I've had an I initial look but I don't have blisters

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Mine doesn’t start with blisters - and I’ve had it coming and going all my life. It often starts very like your picture and then either goes or the blistering starts. Looks like tiny bits of inlaid glass or tapioca so can be hard to see as not always raised. It usually starts a bit itchy with peeling for me. That’s the mild, early stage. It’s the location that makes me think of eczema I guess. But my ANA is pattern of Scleroderma or Dermomyositis so I always get a bit concerned - especially with the severe neuropathy that seems to go with it.

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PS as you have Sjögren’s it could be the skin dryness is affecting your hands?

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Yes, it could be although I have a mild form of Sjogrens. With regards to scleroderma, apparently my bloods have always tested positive but I don't have it

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Well you may be like me with my Sjögren’s then and just have an overlapping mix with your Lupus. Or your Sjögren’s might be flaring? This wouldn’t only be necessarily in eyes or mouth if that’s what you mean by mild? Sjögren’s is a system wide disease too.

The symptoms of diseases seem to change and swap about in my experience. For example the neuropathy of Sjögren’s has really changed my skin over the years.

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Yes, it does seem to affect my eyes and mouth. I'm really hoping it's just a one off as I'm feeling the best I've been in a year and a half. I actually feel "normal" again.

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Well I really wouldn’t let a bit of peely skin or mild Sicca stop you enjoying relative normality again! Sjögren’s and Lupus are both evil and if they were uber active they would let you know - as you already know yourself!

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Oh, I definitely know that unfortunately. Has included a recent hospital admission so I'm enjoying each and every day now as long as it lasts.

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My hands started like yours and have gotten so much worse now.They have been like it for over a year now.Even the steroid cream has never cleared it up.My gp said it's pampholics.In other words I'm allergic to something.or lots of things and may never find out what it is.Fairy wash liquid is one thing.Was also told could be side affect from one of my meds.At hospital Friday so hopefully will get sorted finally as they are splitting now and is going onto fingers as well.Hope you get yours sorted soon to.Take care x

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Hi, sorry to hear that, sounds very painful. Let me know how you get on with your appointment on Friday x

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