I read this site alot because although I have Sjogrens and systemic vasculitis I have many lupus symptoms too and have divided my specialists whether lupus is a definite diagnosis too, but I have a question on sunlight which I know is a big issue for many people with lupus.
I have to avoid the sun and if I can't avoid it wear factor 50 and head for the shade, however I notice that even just being in it to walk to the car for example I get dizzy almost immediately and get the same effect from fluorescent lighting that is in shops and many hospitals. I understand the whole physical effect that the sun has on skin and why that can cause symptoms or a flare but I seem to be getting the same as soon as the sun appears from just getting from a and b in it. I am having a bad time at the moment and a re-emergence of my symptoms, hair loss which is always a bad sign for me of worse to come have felt really dizzy for the last few days and am sure the sun is to blame. Does anyone know if it can be an effect the sun has on eyes? I only have to walk under a fluorescent light in a shop and I feel like I could fall over I am so dizzy and weak legged (I have neuro symptoms too).
I had a bad flare last year after the brief early summer we had and am not sure what the answer is.
Many thanks for reading