Is anyone as fed up as I am about being told that they are deconditioned and that doing exercise will help with fatigue, when actually, it doesn't. I feel like I am screaming, exercise does not make me feel better it makes my fatigue worse. but no one is listening.
It feels like the doctors don't really know the whys of lupus fatigue, but they are quite happy to blame the sufferer for their suffering. its like they have their finger in their ears and refuse to listen to any counter arguments that proves otherwise.
Before I became Ill with lupus I was very fit. I swam once a week, went to the gym twice a week and walked practically everywhere, I was not deconditioned.Yet from the onset of my illness I have experienced constant extreme fatigue.
Over the years since I have had lupus, I have tried all sorts of manner to exercise and I always get the same result, complete exhaustion. after trying so many different methods and getting the same result, I have resorted to short walks on my better days.
If lupus fatigue is due to deconditioning, why did I have it from the beginning, when clearly I was not deconditioned and why does it get worse on bad days and during flares? Does anyone have the same dilemma, or can anyone please enlighten me.