There is so much bad news connected with lupus that I wanted to share my recent positive experiences. I was diagnosed 8 yrs ago and have been doing well ever since on my meds- only one flare 6yrs ago.
Last year I took voluntary severance and decided that I wanted to travel the world- I wasn't going to let Lupus stop me!
First problem was Travel Insurance- everything is fine until you mention SLE and then no one will insure you or it will cost you a fortune- but I persevered and got lucky (EssentialTravel is the company that insured me, lupus and all very reasonably)
Second problem was the Meds- I take a total of 10 tablets everyday, and this adds up to a rather large amount is you times it by 6mths! My doctors have been incredibly supportive and prescribed 6mths supply in advance but I still had to carry them all. This meant although I travelled through some amazing countries( India, Italy, Australia, Fiji and South Africa) the only keepsakes I have are photos!
I am halfway through my trip and still have another 6 mths to go- I just wanted to let people know that Lupus doesn't need to or wont always keep you back. 8 yrs ago I thought I would never get out of bed again!