parents with children who have lupus

[kathy43]

hi im just wandering if there are any parents who have children or loved with lupus as my daughter was diagnosed with lupus sle when she was 15 years old iam her carer and she is now 21 yrs old and lives at home with me, look forward to hearin from any one who has

[Hidden]

sorry i dont but saw you had no replys, i know my mum has really struggled watching me with this disease over the last 10 years. very best wish and hope you have some contact from parents soon

[kathy43]

well if your mum would like to contact me through this site that would be nice and we can have a chat

[kathy43]

there is a site on facebook called lupus is real and its for people with lupus they are a friendly bunch of people and very understandin if you want to have a look

[Hidden]

thanks kathy shes not the talking to strangers type

[kathy43]

thats ok then

[angel298]

Hi Kath, im Lynne, my son has discoid lupus I know thats not the same but not sure how things are going to go,if you fancy a chat message me