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LUpus Patients Understanding and Support
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Diet suggestion

I was diagnosed with lupus 7 years ago and I've been taking Plaquenil since then. Last month I was rushed to the hospital where they performed an emergency small bowel resection removing 4 feet of my small intestine due to a blood clot. I stayed in the hospital for 10 days and they ran several tests on my blood to find out why it was clotting. They found nothing and said it was probably Hughes syndrome (sticky blood) due to my lupus. I am on blood thinners which means I can't take ibuprofen any more during my flare ups. On top of that, while I was cut open they saw that I had fatty liver disease also attributed to the autoimmune disease. What foods should I be concentrating on adding to my diet or eliminating from my diet given my conditions?

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I’m sorry to hear about your problems. I trust you are healing well.

There is no specific diet for Hughes Syndrome, other than the advice we are often given to be gluten free, make sure that Vit D, B12, Folate and Ferritin are at optimum levels and get your thyroid levels checked too.

FLD seems to be quite prevalent generally at the moment and I’m not sure there are any real links to our specific condition other than the fact that our immune system is affected. I think eating a proper healthy balanced diet is important, which obviously can have some limitations due to Vit K issues.

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I am sorry to read your story. Am I right to assume you have Systemic Lupus Erythematosus and Hughes Syndrome/APS?

I would discuss this with your consultant but as far as I am aware, there aren’t specific diets but seeing a hospital nutritionist or one recommended by your GP might be helpful.

With good wishes,

Ros

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