I was poorly all over November and December with a terrible cough and flu like symptoms. Contacted the Dr's numerous times x rays show pneumonia. A and e visit as in agony on right side, 2nd xray was worse antibiotics not working. CT scan the following day to be told 28th Dec I have a large mass lung cancer. Well to say my world ended is probably an unbderstatment. I have had an mri, just waiting on pet which is next Friday, biopsy Monday praying for answers by the 19th. I'm obviously really struggling to sleep, 14 hours in 5 days, I can't switch off. I have an amazing amount of love and support and I am extremely lucky. But I'm absolutely devastated. I can't be alone as I'm a worrier and overthink everything. I honestly feel like I'm just living in a nightmare. I've come here as I am wanting to speak and gain advise from people in the same situation as me xxx
Treatment plan day for me today at 10... - The Roy Castle Lu...
Treatment plan day for me today at 10am. Wish me luck I'm so so scared 🙏🤞
Hello again Rubyjean28, I am in same situation as you, living a nightmare I got my treatment plan when I saw the Oncologist on 28th December. I fully understand how you are feeling. I took a friend with me and thank heavens that I did because my head was just a mess and she was able to take in what the plan was so I hope you have someone with you. My very best wishes, please let us know how you get on when you feel that you can. Best Wishes Sue xx
Hi snackjack, hope your OK? I'm glad you had your friend with you. I have been diagnosed stage 4 non small cell, I've got to wait now as they are testing bio markers. I feel like I'm living someone else's nightmare atm 😭
I am so sorry about your diagnosis, I was hoping for better news for you as I am living the same nightmare and really was hoping that your news would be a lot better as I wouln't wish this on anybody. I know you have people around you that love you and I am sure will support you all they can but if ever you feel like a rant to release some of what you are feeling please feel free to Direct Message me anytime. At the moment I am still trying to just deal with each day as it comes. I hope they don't keep you waiting to long before they come up with a treatment plan. So so sorry. xx
Good morning, good luck for today. I will be thinking of you 🙏 sorry to hear you are going through this. I am a carer for my husband going through similar. Treatments have improved massively in recent years. He was given 12-18 months to live in 2020 at the start of COVID. He’s been having treatment ever since, he is stable that’s the best it’s going to get, we still go on holidays, play golf and live a normal a life as best we can. It’s a cruel stressful diagnosis to have but staying positive really helps 🤞If I can be of help anytime please get in touch 🙏🙏🙏
Thankyou and I'm glad he is stable and you live a normal life as possible. It's a horrendous diagnosis. I'm trying to be positive but by heck its hard xx
Hi Rubyjean, good luck for today, thinking of you, update me when you can, all the best, Lisa x
Thankyou. I have been diagnosed stage 4 non small cell, I've got to wait now as they are testing bio markers. I just feel numb all over atm xx
Hi Rubyjean, I'm really sorry to hear that. I don't know alot about the different cancers, I need to read up but keep putting it off, pretending it's not happening. You wake up in the morning and for a while everything's OK then you remember. Feeling numb too. Here if you ever need to talk and keep me updated. I know nothing about bio markers yet either but I know the waiting for answers is agonising. We'll probably start treatment around the same time, but I'm still waiting for a diagnosis atm. I have the lung needle biopsy next Thursday - really looking forward to that - not!! Let me know when you know more, but here to chat anytime - Lisa x
Hi Rubyjean28
I am so sorry to hear you have been diagnosed with lung cancer, this must be an overwhelming time for you . You will hopefully find some comfort and support by reaching out on this forum. You will have a better understanding of your disease and any available treatment options , once your MRI , PET and biopsy results are reported . It usual that once theses results are available that a potential treatment plan will be discussed ,as has already been said there are many more treatment options available now than in the past. It is often better to seek any information or support from reliable sources,. Roy Castle lung cancer foundation can offer you support and information on lung cancer , treatment and how to learn live with lung cancer. You can contact us through the ask the nurse service where you can talk to one of our nurse on 08003587200 or info@roycastle.org . You will have a lot of questions , often it is a good idea to write these questions down so that you remember them at your next consultation. You should be allocated a clinical nurse specialist who will also be a valuable resource for information and support. We have booklets that can also provide you with information and support , these can be found at; roycastle.org/help-and-supp... . Good luck.
Sorry for late post - I know how you must be feeling - Out of the blue July 2021 I was diagnosed with Bladder Cancer,
It's very scary at times - Mine has fluctuated in grades which made matters worse.
I hope your treatment plan goes well Rubyjean28 - You will feel better knowing something is being done.
Best wishes, Ern 007
Thanks for your reply. Yeah I do feel a bit better now that a plan is being put in place it gives you something to aim for, instead of the waiting which I found so difficult. I think it's the not knowing which makes it scary.
sorry to read of your natural anxiety when told these things - there are now so many treatments which have improved the situation for so many since my diagnosis in January 2011. I remember feeling bewildered, scared but also carrying on working, attending Xmas events, right up to treatment and it took a month after I'd had my treatment before I was actually given my diagnosis. Since then the world of lung cancer research and treatment has completely changed so if you need better information than the scary often outdated and inaccurate stuff that Google throws up, do have a look at the Roy Castle lung cancer foundation website especially the stuff on tests, awaiting a diagnosis or the type of treatment that might be selected. You'll read on there how personalised treatments now are - hence the waiting for various tests to find the exact answers to get you on the most appropriate treatment. thinking of you and wishing you successful treatment. good luck.
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