My Mum had her second scan 3 weeks ago to check on progress. She was diagnosed stage 3b NSCLC in April this year and started treatment of two chem and immunotherapy even though her PDL1 (sp) was below zero.
After her 4th treatment she had a scan which showed shrinkage and that the lymph nodes had nearly gone. At that point they decided to take Mum off one of the chem drugs and she continued her treatment with one chemo and the immunotherapy.
The second scan report shows that the tumour has stayed the same, but that the lymph nodes are back along with a couple of new spots. The doctor organised a face to face appointment with her for today and has said he wants her to carry on with same treatment for 8 weeks, then another scan. If no improvement she may have to have radiotherapy and maybe different chemo. He has said he’s happy to meet me if I have any questions and to explain what’s happening to the cancer. Although the cancer has got worse in the lymph’s he said he was not too concerned.
I am so worried that this is a really bad sign. I also do not understand why they took one of the chemo drugs away when she had had such a positive response. Surely if the triple plan was working, you'd continue it? Also why wait 8 weeks of the same treatment when it’s not working? Does the mention of radiotherapy mean things are not looking positive any more?
Can any one offer me any advise or positivity.