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The Roy Castle Lung Cancer Foundation

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cancersucks1994 profile image
21 Replies

Hi everyone,

I’m new here, wish I didn’t have to join this group but nearly 3 weeks ago my dad got diagnosed with Lung Cancer.

Last week he had an operation to remove part of his Lymph Node to do an in depth biopsy to find out what treatment etc hes to have.

My nan died in March of cancer in the face so to say I am distraught is an understatement.

He is only 51 so this is a major shock.

Hoping to gain some support through this website and hear stories etc.

Thank you for reading my post.

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cancersucks1994 profile image
cancersucks1994
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21 Replies
keepinghope2017 profile image
keepinghope2017

Hi, so sorry you are having to deal with cancer in the family for a second time and so soon after your nans death. It is really supportive forum and if you need to talk feel free to message. Take care x

cancersucks1994 profile image
cancersucks1994 in reply tokeepinghope2017

Hi, Sorry for the slow reply. My dad gained his wings just over a week ago, he fought the cancer for 5 months and passed away less than a year after me losing my nan :( xx

RoyCastleHelpline profile image
RoyCastleHelplinePartnerAsk the NurseRoy Castle

Hi,

I spoke to you earlier on the phone today and have sent you the information we discussed.You will get a lot of support from others in this forum.

Kind regards,

All the team at the support helpline.

cancersucks1994 profile image
cancersucks1994 in reply toRoyCastleHelpline

Hi, Sorry for the slow reply. My dad gained his wings just over a week ago, he fought the cancer for 5 months and passed away less than a year after me losing my nan :( xx

RoyCastleHelpline profile image
RoyCastleHelplinePartnerAsk the NurseRoy Castle in reply tocancersucks1994

So very sorry for your loss and so soon after your Nan. Please do not hesitate to contact us if you would like to talk about anything, our email is lungcancerhelp@roycastle.org and the free phone nurse led helpline number is 0800 358 7200Kindest regards

The Roy Castle Support Team

RoyCastleHelpline profile image
RoyCastleHelplinePartnerAsk the NurseRoy Castle in reply tocancersucks1994

You can feel quite isolated in grief and there are many charities available to provide support and I have placed some of these below:

The Loss Foundation is the only UK charity dedicated to providing support to those who have lost their loved ones to cancer.

thelossfoundation.org/ 0300 200 4112

cruse.org.uk/ 0808 808 1677

The Marie-Curie foundation provides information on support for those in grief:

mariecurie.org.uk/help/supp...

0800 090 2309

Kindest regards

The Roy Castle Support Team

cancersucks1994 profile image
cancersucks1994 in reply toRoyCastleHelpline

Thank you, im in bits. Have actually considered ending my life to be back with him :( xx

RoyCastleHelpline profile image
RoyCastleHelplinePartnerAsk the NurseRoy Castle in reply tocancersucks1994

Dear cancersucks94,These types of feelings after a loss of a loved are not uncommon, please do not feel that you are alone as there is support available for you which will help you guide you through this difficult time. Speak to your Gp about how you are feeling , he will be able to offer advise and support. The charity cruse.org.uk/ have a wealth of advice and information on grief and grieving, it can be comforting to know that you are not alone in feeling this way.

If you would like to talk to someone please do not hesitate to get in touch with us on our nurse led helpline free phone 0800 358 7200

Kind Regards

Roy Castle Support Team

Eglingham profile image
Eglingham

Hi, so sorry you are going through this again so soon after loosing a loved one. The forum is amazing if you have any question or even just want to chat. Here if you need to chat ♥

cancersucks1994 profile image
cancersucks1994 in reply toEglingham

Hi, Sorry for the slow reply. My dad gained his wings just over a week ago, he fought the cancer for 5 months and passed away less than a year after me losing my nan :( xx

Eglingham profile image
Eglingham in reply tocancersucks1994

I'm so sorry to hear your sad news. My thoughts an prayers are with you and your family at this sad time. 🙏 ❤️

JanetteR57 profile image
JanetteR57

sorry to read you lost your nan to cancer earlier in the year and now your dad facing the possibility of a diagnosis.

However there are over 200 types of cancer, not all are affected the same way and there are many different treatments for the different types.

I was 2 weeks after my 52nd birthday when I went to A&E and a 'lesion' was found on my left lung, after a misdiagnosis of asthma (due to never smoking history and childhood asthma) eventually had scans that revealed a large mass. I had surgery a couple of months later to remove the 7cm tumour and half my left lung. I was back at work and swimming 3 months later. That was in Jan 2011.

My dad had two lots of bowel cancer in his 50s (when I was in my 20s) and we had thought he wouldn't make 60 as was so very poorly after two major surgeries. He was 90 in February and had another primary bowel cancer in 2016 and yet more surgery.

Losing a loved one to cancer can make us believe that is the only outcome but thankfully it isn't. The biopsy being taken is due to the many targeted therapies now available for some types of lung cancer to personalise the treatment to the specific characteristics of the patient's condition for a greater chance of success than using the same 'blanket' therapies for everyone. Every treatment mode has changed since my diagnosis and now the majority of lung surgery in the UK is keyhole rather than open (which I had), (if considered operable), radiotherapy now offers more specific types in something called SABR (cyber knife), chemotherapy is often combined with targeted agents or immunotherapy and for many patients a mix of treatment methods is used.

I'd urge you to not use the internet/google as so much information is out of date and inaccurate as treatments are developing all the time based on clinical trials around the world. For trusted information, Roy Castle lung cancer foundation regularly updates its patient information with clinical input and reviewed by patients. try not to fear the worst - it is hard I know. you may find the book 'what can I do to help?' by Deborah Hutton helpful. good luck.

roycastle.org/about-lung-ca...

cancersucks1994 profile image
cancersucks1994 in reply toJanetteR57

He has lung cancer hun, he was diagnosed 3 weeks Go. It is lung cancer, we just dont know stage yet x

JanetteR57 profile image
JanetteR57 in reply tocancersucks1994

thanks for clarifying - lots to hope for - don't give up.... I had my surgery Dec 2010 but didn't find out the diagnosis, stage or anything until 13th Jan 2011. I've been involved in lung cancer research since 2014 and seen the vast improvements in treatments and knowledge about the different types, treatments so wishing him and you all the best. waiting for results becomes a key part of treatment unfortunately so finding a way to distract yourselves is helpful if you can do it. good luck. roycastle.org/about-lung-ca...

cancersucks1994 profile image
cancersucks1994 in reply toJanetteR57

Thank you, the wait is horrible :( xx

JanetteR57 profile image
JanetteR57 in reply tocancersucks1994

in a world when we're so used to getting quick results, unfortunately the pathology testing usually takes time (without a pandemic adding to the pathology labs' workload) but it's not exclusive to the biopsy wait - imaging, waiting for the next test, then the results etc are all part of the experience..... once I was put onto annual checks as my only follow on treatment, the wait experience (some refer to it as scanxiety) didn't get easier so it's essential to find some way to cope with these inevitable waits.... try and take your minds off cancer and get on with living as best you can.... if it takes over every waking moment it can seem even more of a burden to everyone's thoughts....

cancersucks1994 profile image
cancersucks1994 in reply toJanetteR57

Hi, Sorry for the slow reply. My dad gained his wings just over a week ago, he fought the cancer for 5 months and passed away less than a year after me losing my nan :( xx

JanetteR57 profile image
JanetteR57 in reply tocancersucks1994

so sorry to read this sad news - thinking of you at this really difficult time... take care x

cancersucks1994 profile image
cancersucks1994 in reply toJanetteR57

Thank you, unfortunately pneumonia took him in the end x

JanetteR57 profile image
JanetteR57 in reply tocancersucks1994

so sad - that's what killed both my grandparents some years ago - it's much nastier than many think and can hit those with existing lung conditions very hard.... deepest sympathy

cancersucks1994 profile image
cancersucks1994 in reply toJanetteR57

Thank you very much x

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